What should I know when first diagnosed with hairy cell leukemia? When a patient is first diagnosed with hairy cell leukemia, knowledge is power. So get as much as you can, try to know your disease, try to understand your disease, try to understand what to watch out for because that is part of our education. Even if a patient doesn't need treatment right in the beginning, when they come to our clinic, part of our job is to make our patients understand, of course, you don't need treatment now, but what are the things that a patient is supposed to watch out for? If there's a change, to call their doctor, this thing has changed and I need to be seen. Take ownership of your disease, know what symptoms to watch out for, and your doctor should be accessible to you at any time.