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Iliana • Admin
Myeloproliferative Neoplasm Discussion • April 29
Sharing Our MPN Experiences
Hi everyone! Fatigue is something many people living with MPNs (ET, PV, MF) experience, but it can show up differently for each person and is still not fully understood. HealthTree is partnering with MPN specialist John Mascarenhas, MD, to better understand how fatigue affects daily life, emotional well-being, and how people cope. 🕒 The survey takes about 15–25 minutes and includes questions about fatigue patterns, triggers, and real-life impact. Your experience can truly make a difference in helping researchers improve care and quality of life for MPN patients. 👉 Learn more here:https://healthtree.org/myeloproliferative-neoplasm/curehub/private/research/TIWa4HkKxF3OI183UGmV?utm_source=&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
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https://healthtree.org/myeloproliferative-neoplasm/curehub/private/research/TIWa4HkKxF3OI183UGmV?utm_source=&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
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azureAnemone
General Discussion • March 26
M-Spike % is rising
My M-Spike % a few months back began to rise from 0 beginning at: 2.7%, then 3.5, 4, 4.2, & currently at 5.3%. I'm on Dara once per month injection only. I immediately contacted my Doctor who advised me to continue thru my 6 month therapy regimen, & then meet in April. Is 5.3% considered alarmingly high? Also, how do you go about discussing changes in therapy? I've had a Stem Cell Transplant in 2021 that didn't reduce the cancer. Any advice would be greatly appreciated. Ken