I am 4 years out from my stem cell transplant and my IGG numbers have remained stubbornly around the 150-160 mark. This is way below the bottom end of normal. My oncologists (I am now on my third in four years) as well as my MM specialists have all told me that I do not need to get IVIG unless I am getting a lot of infections. I am very careful when I go out (which is not often), always wear a mask around other people and do not eat out or go to places with crowds. I haven't had any infections so far but I'm pretty sure that is mostly because of how careful I am. What has been others experience with getting IVIG? Has anyone gotten it as a prophylactic?

I'm looking for a new hospital that puts emphasis on bone health. Currently, I'm at HUP with fabulous docs but when it comes to my bone health it's a miss. Even though I've been in remission since 9/23, I had another compression fracture in Feb and now somethings brewing agn. I pushed for new testing and pet scan showed tons of new lesions throughout. I'm awaiting a bone marrow biopsy, as well. If I am in "remission" and my dr kept saying everything was great, why is this happening and why isn't more emphasis put on bone health? I've also watched my m-spike increasing since May, but still in safe zone at .5 Background: In 2020, I started w/ xgeva which caused osteonecrosis. I now receive zomeda, but only twice a yr.

I am a 54 years old male and have been with low risk SMM for the past 4 years. If i have to have any life insurance, are there any chances with this health condition?

Over the past four years I've been dealing wih MGUS and this past September myKappa/lamda light chain ratio went up to 110 so my Dr.(hemotologist/Oncologist suggested I have a bone marrow biopsy which I had in late September. The results of the biospy show I have 15% plasma cells in my bone marrow and the FISH results show I have a high risk for MYC/igh myeloma which I understand is an agressive, hard to treat myeloma. I will be 80 years old in December and I have no other Myeloma symptoms like kidney problems, high calcium, and anemia. All my other blood work has been normal for the past four years. I'm in good health and walk on a regular basis. Is anyone else dealing with this issue? My Dr. has requested I have blood work every 3 months which I have already scheduled. I hoping I will continue to be healthy, but if not, does anyone have the difficult to treat myeloma and if so, what helpful information can you give me. Thank you for your response.

Has anyone never recovered IGG levels back to anything close to normal and not gotten IVIG treatment?

Hello have any one out there had the Bispecific done

Does anyone know about Beta 2 MICROGLOBULIN Serum and a level of 3.38? I’m getting confusing information. Thank you!

Anybody have MDS AND HAVING SUCCESS WITH CHEMO.? Ever go off of it?

Anyone familiar with tooth & jaw pain that flares up for several days & then subsides. An upper tooth that is capped aches periodically. Recently I’m also having pain in the area by my back lower left molar. The pain can be controlled with Tylenol. I’m receiving treatment for relapsed myeloma.

Today is Open Enrollment for Medicare. Please review your plan annual change docs you received in the mail. Make sure you still have the coverage you need. Costs has increased and coverage areas networks may have changed.

Medicare Enrollment Starts today!! Review your Annual Plan change booklet that you should have received from your insurance plan. Look for any changes that will not benefit you. Are your providers still in network? Is your insurance plan still good for you?

anybody have neck issues with their myeloma....my husband has a stiff neck, can't turn side to side, been about 3 days and no change....trouble sleeping and has to take Tylenol constantly

A hidden tool.....My oncologist team told me about taking probiotics on an empty stomach in a pill form and it helps with constipation far better than anything else. Walmart or prescribed. Take 2 tablets a day. I take 1 in the AM and 1 at night. If you aren't going anywhere for 2 hours you can take them together in the AM. I think food from 3 weeks ago was dislodged. 😆