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sharper
Chronic Lymphocytic Leukemia Discussion • October 28, 2025
My story
I am 65 years old now but was diagnosed 7 yrs ago with Wait and Watch. Since then my spleen is enlarged, I have swollen lymph nodes in few places, WBC is 41,000 with low platelets and low RBC. Still no treatment at this time but I do have IVIG infusions every 3 months. I know treatment may be on the horizon but until then just trying to live healthy.
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ChioOsuna
Acute Myeloid Leukemia Discussion • October 28, 2025
Taking Charge of AML Care: Free Virtual Event
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📣 Calling everyone on the Mountain & West Coast! 🌄🌊 Join us for a free virtual event: “From Diagnosis to Decisions: Taking Charge of Your AML Care” 🩺✨ TOMORROW Oct 29, 2025 at 2:00 PM EDT 🔗 Sign up now: https://healthtree.org/lymphoma/community/events/oct25-mountain-westcoast-aml-diagnosis-decisions Dr. Brian Jonas will walk us through the basics of AML, the importance of genetic testing, and how to advocate for the best care with your healthcare team. You’ll also be introduced to local resources, support organizations, and others in your area who understand what you're going through. 👉 Can’t make it live? No worries, we’ll send a recording to all registered participants.
Diagnosis to Decisions: Taking Charge of AML Care - HealthTree for Acute Myeloid Leukemia

Diagnosis to Decisions: Taking Charge of AML Care - HealthTree for Acute Myeloid Leukemia

Free virtual AML event with Dr. Brian Jonas covering basics, genetic testing, advocacy, and local support to help you make confident care decisions.

https://healthtree.org/lymphoma/community/events/oct25-mountain-westcoast-aml-diagnosis-decisions
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Michael
Chronic Lymphocytic Leukemia Discussion • October 27, 2025
High WBC & Spleen: Is It Time to Treat?
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I have a 20 year history of cll, thus far just watching. No fatigue or adenopathy to speak of. WBC now up to 200,000. Doctor wants to treat me.Only other factor is my spleen is 17.5 cm. I feel fine. Is the white count or splenic size enough reason to treat?
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Texassuzy
Multiple Myeloma Discussion • October 27, 2025
Navigating Medicare Part D in Texas?
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Advice Please:) I’m in Texas and on employer sponsored plan BCBSTX ,receiving myeloma care at UT Southwestern. I read recently that 2026 BCBS will no longer contract with UTSW. 1. Anyone on Medicare having significant problems getting their medication covered? 2. Anyone have a part D Tx Medicare plan they recommend? I’m in N Texas so I understand insurance providers use zip code for plans. I would really appreciate any/all advice. I will reach out to insurance providers as well as our sw liaison at the medical center. Thank you so much! Suzy
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Debbie
Multiple Myeloma Discussion • October 25, 2025
Understanding Lab Results For Relapse?
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What on my blood test do I look at to check if myeloma is present again. I don’t see my Dr until mext week and I am little anxious and want to learn which number to look at. Thank yo in sdvance for any help.
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FulltimePoppy
Multiple Myeloma Discussion • October 25, 2025
Rising IgA and Diarrhea in Remission?
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I’m currently in remission. MRD- Out of nowhere my IGA went from non measurable to 127. A high jump. All my test show remission. In fact I just got all my bi yearly test. Bone marrow negative and MRIs all clear. The only thing I can point to is I have had non stop diarrhea. In fact severe! Could this impact IGA?
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XimenaG • Admin
Multiple Myeloma Discussion • October 24, 2025
Positive Treatment News: Blenrep Approval
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🚨 Recent News in Myeloma Treatment! 🚨 The U.S. FDA has approved Blenrep (belantamab mafodotin-blmf) in combination with Velcade (bortezomib) and dexamethasone (BVd) for relapsed or refractory multiple myeloma. ✨ Based on the DREAMM-7 trial, this new treatment option showed a 51% lower risk of death and extended progression-free survival to 31.3 months compared to 10.4 months with standard care. This approval gives new hope to patients who have received at least two prior lines of therapy. 💪 📌 Learn more about this important advancement 👉 https://healthtree.org/myeloma/community/articles/blenrep-fda-approval?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
U.S. FDA Approves Blenrep for R/R Multiple Myeloma - HealthTree for Multiple Myeloma

U.S. FDA Approves Blenrep for R/R Multiple Myeloma - HealthTree for Multiple Myeloma

Belantamab mafodotin-blmf (Blenrep) in combination with BVd has been approved for R/R multiple myeloma.

https://healthtree.org/myeloma/community/articles/blenrep-fda-approval?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
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Iliana • Admin
Acute Myeloid Leukemia Discussion • October 24, 2025
Share Your Experience: Paid AML Focus Group
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Hi! We are seeking AML patients to participate in a paid, 2.5-hour virtual focus group scheduled for mid-November. Eligibility criteria: Diagnosed within the last year No treatment or receiving low-dose chemotherapy such as Ven+AZA or Decitabine Participants will receive compensation for their time and feedback. If you are interested, please fill out this form: https://forms.gle/WJrcwM7ALuoWKuN36
Acute Myeloid Leukemia Focus Group Interest Form - HealthTree Foundation

Acute Myeloid Leukemia Focus Group Interest Form - HealthTree Foundation

Thank you for your interest in participating! We’re looking for patients who have been recently diagnosed with acute myeloid leukemia (AML) and are receiving no treatment or low-dose chemotherapy (such as Ven+AZA or Decitabine). Your feedback will help improve resources and support for AML patients. Participants will be compensated for their time and feedback. For any questions please reach out to mary@healthtree.org healthtree.org

https://forms.gle/WJrcwM7ALuoWKuN36