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Denise
Multiple Myeloma Discussion • May 27
Extreme Itching
Hi everyone. I have high risk MM but currently MRD- (great news). I have been experiencing severe whole body itching. Has anyone else experienced this? And if you have, what is your remedy! When it happens I lather up with lotion which does give some relief. I am not on any maintenance medication. I'm currently on: Bactrim, Valacyclovir, Iron, B12, Potassium, Hydrochlorothiazide and Oxycontin. The itching is not every single day but at least 3-4 days a week. Any help is appreciated. Thank you Denise
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Kneyed
Multiple Myeloma Discussion • May 27
Cost of Darzalex Fastpro increased?
There have been some changes in my Medicaid this year and my co-pay has increased. Digging into my hospital billing I discovered that the charge for the monthly dose of Darzalex has increased by 75% ! I can’t seem to get an explanation from them after almost 2 months. Anyone else notice or experiencing a cost increase in this ? I’m on maintenance and doing well but this is stressing me quite a bit. Thank you and best wishes for Wellbeing 🙏
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LarryLee1
Multiple Myeloma Discussion • May 26
Next Step?
Hello Everyone. last Aug. 2025, was diagnosed with a solitary Plasmacytoma in the L2. Radiation treatment only reduced the lesion by 20% and the medical team wants to attack this one spot systemically with chemo/immunotheopy for the next year. Does anyone know of a successful, next step in treating a radiation resistant solitary Plasmacytoma? ( before its possibly becomes multiple myeloma or vertebrae collapses)
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JennyA • Admin
Multiple Myeloma Discussion • May 25
Remote monitoring devices for CAR T or Bispecifics
Hi everyone, has anyone used remote monitoring devices for CAR T or bispecifics? If so, do you know what company was used? Or what facility you are receiving care from? I'm curious to know if that was a good experience for you. Did it connect into your EHR? Did it connect with your care team? Interested in hearing from you.
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kenlevy
Multiple Myeloma Discussion • May 24
Copay Assistance Fund Now Open
CPR Funds Now Open: Multiple Myeloma Health Equity The specific eligibility criteria for each fund can be found at https://copays.org/funds/. For personal assistance with the application process please contact us toll-free at 866-512-3861 or visit our application portals at https://portal.copays.org/#/login, with access available for patients, providers, and pharmacies.
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Luz42
Multiple Myeloma Discussion • May 22
Starting treatment next week.
Hello all, I am newly diagnosed (SMM since 10/2020) and will be on Dara, Velcade and Dex. I am starting treatment because I have osteoporosis and have multiple spine fractures (no lesions). I am leary about starting biphosphinates and even more terrified about starting treatment since I am very thin (undernourished) weighing 103 at 5'8". I am prone to nausea and worried it will make my back fractures worse. I am currently using a walker because I have a difficult time sustaining my core. Anyone has anything similar? I am very nervous about getting started.