Need good questions to ask hematologist at the end of husbands induction cycle three as we approach SCT.

I have been on this journey since May 2021. 3 stem cells and multiple treatments. I’ve been in remission and been MRD several times. Just can’t seem to find the right Combination. I just started Teclistamab in June and it’s had reduced all my tumors and put me MRD negative I need to connect to those who have been on the trails for Teclistamab and have good results. I need some encouragement. Last year was rough. I’m at UAMS in Litlle Rock. Help is needed.

Hi all, diagnosed earlier this year with SMM at 42. Learning as much as I can about the journey I am now on and trying to not think about the potential outcomes. Glad to have these resources to rely on. Looking for others dealing with this at a younger age.

My husband was dxd in August and is just finishing cycle 3 of induction therapy at Mayo Clinic in AZ. They told us he would do 4-6 cycles before SCT. Markers have been moving in the right direction. Our 3 visit with hematologist is next week. At what point should we press for a more definitive timeline in terms of scheduling the transplant? At last visit, we were told we were looking at January 2024 most likely but it seems like this is somewhat flexible….or is it.? How close an analysis is done that may cause him to need a full 6 cycles of induction therapy? Can anyone tell me even more specific questions to ask hematologist at this point? For SCT, he will be transferred to a completely different medical team. We live close to clinic and are told SCT will be done outpatient. How challenging will it be for me as the caregiver?

Does anyone know of an organization that provides palliative or hospice care for MM patients in their homes?

Hi all! What are things that you would like to learn about in our 2024 educational webinars, specifically about kidney involvement and myeloma? What topics are important to you? What questions do you have for doctors? I want to make sure we are having educational events that are beneficial to you. Thanks in advance for your help!!

I am 30 days into the Talley chemo treatment. My Car-T lasted 22 months. So far I’m feeling fine. Other than losing my sense of taste, I’m doing good.

Looking for advise and guidance on reactions between suppliments and medicines. Can anyone recommend a medical internet site where you can impute your info on med's & sup's and get feedback ???

My husband had car-t 4 months ago. His platlets are still low and receives hemoglobin shots. He also has to go for weekly bloodwork and s once monthly iGG infusion. Doing good otherwise but we had many tough spots. Anyone else experience low blood numbers that took a while to come back? They said the car-t cells are still very active.

I was diagnosed with MM after I broke a vertebrae in an auto accident and another one after I slipped on a wet deck and hit my back. My first diagnosis was stage IIIB. My kidneys were shutting down and they debated whether I should go on dialysis or try to flush them with IVs of constant liquid. I was lucky because the liquids worked, but I still have elevated levels every time I have blood tests. There are treatments that I couldn't have because of my kidneys. I have been out of remission since 2020 but not on any treatment. My most recent blood work was last week and I won't have to go on treatment yet. I am also allergic to the treatment drug Revlimid and any drug in that class so not having treatment is a good thing.

My hematologist has suggested while I'm taking Lenalidomide and am in remission, I might want to undergo two years of zoledronic acid (Zometa) once a month. I don't have lytic lesions or bone problems at the moment. He cited a study out of the UK that correlates Zometa with increased life expectancy. Any thoughts or experiences out there?

Hi, This is my first post. i was diagnosed in July 2021. I went through SCT in Jan 2022 and I have been in remission. I am on maintenance therapy of Revlimid, Kyprolis, and a Steroid (40 mg iv). I was wondering if anyone else is taking Ozempic while on chemo meds? The steroids are adding on weight week after week and increasing my sugar levels. I started taking Oxempic last week and I am wondering if anyone has anything to share about taking it while having MM? Any negative issues that affected your MM care or remission status? Or positive? Thank you! Kathy

Good Afternoon, I would like a Multiple Myeloma Coach to navigate through Multiple Myeloma information as well as financial resources such as co-pay assistance, transportation, etc. Thank you