Hi everyone my name is Amy salmon I’m 52 yrs old and I was diagnosed in in August of 2018! I was Mis-Diagnosed for two years….. I went to UPMC and kept there for almost a year and was finally diagnosed with MM! I say finally cause I finally had some relief! I was put on Revlimid, Dex, and aspirin. This has been my go to since I heard about this disease. It’s very hard at times dealing with my teeth falling out and other things that I can’t remember. So forgive me please!! I am in remission now for 5 years and I thank God for it and my doctors at UPMC! I really want to help advocate for MM in my community and city! (Pittsburgh pa) but don’t know where to even begin. I want to hook up with people from here As well! I don’t know what anything means on my lab work. Idk, it’s hard when you are black in a white community! No offense anyone. Didn’t mean that in a derogatory way honestly. I have no friends really but 2! It’s a lonely battle for me. I do have my baby girl she’s 24 by my side but I want her to live her life! We butt heads a lot. She is my caregiver! lol whew! IM-a-GINE-THAT! Hahaha love her to the MOON AND BACK THOUDH AND AM SO APPRECIATIVE OF ALL THAT SHE HAS DONE for ME! Well please if anyone wants to talk please reach out! Thank you!

Everyone need to review their health insurance. If you are a Medicare enrollee and have Medicare Advantage, be aware that some providers are dropping Medicare Advantage plans. You need to call and make sure you will be covered and still in-network. Don't forget to review your prescription plan as well.

has anyone had issues with swallowing....it seems my husband has had a change but is dealing with it....did have an endoscopy and that was good, and they did try to stretch his throat but it didn't help much....just wondering how many have this issue.

This is from my genetic page. As this disease progresses could it change or does it remain consent? Does this help with defining my risk level. Thanks in advance.

My immunoglobulins have not recovered since diagnosis 2 ½ years ago, even after SCT. I was put on IVIG in March, after back-to-back respiratory infections. I have been receiving it monthly since then, however I have had 2 more hospitalizations since then. Has anyone had similar? The specialist says my immune system is likely damaged permanently. IgA and IgM are too low to measure. IgG won’t stay jp between infusions.

back pain - my husband is on Dara/pomalyst and dex and has had back pain, maybe nerve pain.....today had a pain that almost dropped him to his knees momentarily.....is this common...I know everyone is different...he does see an acupuncturist which he scheduled one today....just wondering how everyone deals with pain issues....