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Barbie
Chronic Myelomonocytic Leukemia Discussion • June 24, 2024
Sharing My Journey: Watch and Wait at 78
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Hi I’m cmml -1 diagnosed 5/2023 doing wait and c no stem cell said to old I’m 78 in good health anyway just going with flow this is to rare 4 in a million they don’t know much some treatment but not for me yet stay in touch everyone
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blueBadger
Multiple Myeloma Discussion • June 23, 2024
Sharing My Experience With Black Seed Oil
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I am in complete remission from mm for a few years now after going through different regimes and a failed transplant. Now I have no maintence Revlimid or Dex as it was very hard on me. About a year into my journey I read an article about a lady in Tuscany with smouldering mm who was having great results when adding black seeds to her diet. Her numbers got so much better. I started with sprinkling the seeds in my food until I read that the Black Seed Oil Or Black Cumin Seed Oil is more effective than the seeds. I started taking a wee bit as it can upset your stomach. I now take 1/2 tsp twice a week to this day and will continue to do so. It enhances your medication. It helps it to be most effective. My numbers improved greatly with it. I wouldn’t be without it. That’s my story. I’m just telling you what helped me so very much along with my medication and treatment. Hope this helps someone.
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llogue82
Multiple Myeloma Discussion • June 22, 2024
Sharing My Successful Stem Cell Harvest
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Got to 4.6 million for my stem cell harvest and store. Took 3 days and by last day I seemed to be reacting more to the meds they give you to help release the stem cells. Fluid retention and fatigue. My Dr said that was good. Line came out yesterday and so glad to be back home. Good to know they are there if I need them