I was diagnosed in June 2023 and have received treatment since then.

Hello, I am new to this group.

Share your first treatment journey! we’d love to hear about your experiences What was your first treatment, and what was the outcome?

Share your first treatment journey! we’d love to hear about your experiences.

I have been under my employer insurance but in 2025 I am switching to Medicare. I had SCT in 2021 and have been on Revlimid for maintenance. I live in Ohio. If you live in Ohio and on Revlimid, what prescription plan do you find provides the best coverage for cancer drugs?

Has anyone found anything that actually works for Foot neuropathy?

Has anyone found anything that actually works for foot neuropathy.

Has anyone used ozone therapy? Or PEMF?

I'm a multiple myeloma patient who is high risk - deletion 17p leading to lambda light chain problems. I've been warned many times that I am likely to relapse. Yet here I am almost 5 years since diagnosis and I am still alive and on line 2 of treatment. I had a stem cell transplant. The follow-ups failed and I started daratumumab, lenalidomide, dexamethasone in February 2021. My light chain counts decreased and have stayed low. I've had some infection problems. But what I would like to discuss here is medication build-up. We often talk about disease burden. But what about medication burden? I convinced my oncologist to lower my dexamethasone dose. Then I convinced her to lower my lenalidomide dose. This proved really helpful. My light chain count has remained great - but - and this is important - my blood readings have improved. Even my oncologist is surprised. We are now going to try lowering my daratumumab dose. I will keep you posted. My main point is that medication burden is real and should be considered in the course of treatment.

Researchers at the University of Arizona are investigating whether yoga can improve physical 🏋️‍♂️ and mental 🧠 health for myeloma patients through a national clinical trial. This study aims to assess how yoga affects symptoms like pain 🤕, fatigue 💤, anxiety 😟, and overall quality of life. Patients on active treatment can join weekly online yoga classes 🧑‍💻 and track their progress 📊 to help determine the benefits of this practice. While HealthTree will not be facilitating this study, we recognize the importance of physical activity 🚶‍♀️ within the myeloma community and wanted to share this exciting research opportunity with you. Learn more here: https://buff.ly/4eVRhJu

Can you tell me if there are ex pats living abroad that anyone coaches that I could speak with. Thanks