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Pheba1
Multiple Myeloma Discussion • December 16, 2024
Experiencing Slow IGA Recovery After IVIG?
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Has anyone else had IVIG transfusions for immune system after stem cell transplant? I had SCT may 28, 2024. I started maintenance chemo in September. The treatment wiped out immune system, a common occurrence. I learned there are 3 markers, IGA (sinuses and stomach) IGG, (viruses and bacteria), and IGM, (general immunity). I had two treatments a month apart. IGG went from 66 to 792. IGA marker will not budge. Anyone else have this issue. Does it just take longer for IGA to go back to normal? Thanks.
I’m just starting my remission maintenance regime after 7 cycles of induction RVD+Dara. Feeling very grateful about the progress this past year. Question does everyone usually get to continue the lower dose 10mg Revlimid for 21 day cycle or 30 days continuously? I’ll be getting one shot of DarZalex a month too hopefully 🙏🏼 Awaiting the results of my scans + BMB. Blessings and Good Health everyone 💪🪧
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KooGS123
Multiple Myeloma Discussion • December 14, 2024
Managing Bone Disease: Seeking Recommendations?
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Hi Everyone, I'm two months past a stem cell transplant, doing well energetically, in remission. However I have a lot of bone disease in my spine, ribs and sternum, really bad (I've lost 6" in height). I am getting zometa, taking supplements, doing exercises. Can anyone recommend a hospital, doctor or PT program that specializes in dealing with bone disease from myeloma? Thanks.
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alexandra.sazonova.prokouran@gmail.com
Multiple Myeloma Discussion • December 14, 2024
Managing Denosumab ONJ: Treatment and Pain?
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Hi friends, Does anyone have experience with osteonecrosis of the jaw (ONJ) caused by denosumab? What treatments have been most effective for managing early-to-medium stage ONJ? Also, how do you deal with the pain associated with it? Thank you so much in advance🙏🏼
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JohnnyO
Acute Myeloid Leukemia Discussion • December 14, 2024
Bone Marrow Transplant: What to Expect?
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Recently diagnosed with AML. In 10 days I will finish my first 28 days of chemo at which time I will have another biopsy. My Dr told me yesterday that regardless of what the biopsy shows, he plans on 2 more rounds of chemo and then the bone marrow transplant. His decision was based on the fact that even if the chemo results showed remission, he feels as if the cancer will return. I'm 72 yr old formerly healthy male. Anyone out here that can give me what to expect with the transplant procedure
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ChioOsuna
Multiple Myeloma Discussion • December 13, 2024
Your HealthTree Data Made an Impact at ASH
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At ASH this year, researchers presented groundbreaking data from collaborative studies with HealthTree. Your participation in Cure Hub made this possible, showcasing the power of real-world data in driving meaningful advancements in care and research. Thank you for being an essential part of this progress! #ASH24 #HealthTree #PatientAdvocacy #InnovationThatSavesLives #ASHMeeting #Hematology #BloodCancer #MedicalResearch #CancerCare #ASH2024
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ChioOsuna
Follicular Lymphoma Discussion • December 13, 2024
You Made This ASH Research Possible
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At ASH this year, researchers presented groundbreaking data from collaborative studies with HealthTree. Your participation in Cure Hub made this possible, showcasing the power of real-world data in driving meaningful advancements in care and research. Thank you for being an essential part of this progress! #ASH24 #HealthTree #PatientAdvocacy #InnovationThatSavesLives #ASHMeeting #Hematology #BloodCancer #MedicalResearch #CancerCare #ASH2024
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ChioOsuna
Diffuse Large B Cell Lymphoma Discussion • December 13, 2024
Sharing Our Community's Impact at ASH 2024
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At ASH this year, researchers presented groundbreaking data from collaborative studies with HealthTree. Your participation in Cure Hub made this possible, showcasing the power of real-world data in driving meaningful advancements in care and research. Thank you for being an essential part of this progress! #ASH24 #HealthTree #PatientAdvocacy #InnovationThatSavesLives #ASHMeeting #Hematology #BloodCancer #MedicalResearch #CancerCare #ASH2024