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CarrieVB
Multiple Myeloma Discussion • July 3, 2025
Path to Maintenance Without an SCT?
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What treatment were you on and for how long before maintenance if not doing an SCT (postponing)? I am continuing with DVR-d, I collected stem cells for future use if needed.
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Moni64
Multiple Myeloma Discussion • July 3, 2025
Sharing Non-Secretory CAR T Experiences?
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Has anyone from this group received Cart T ? If so please share your experience . I’ve been reading about the promising results of many but am wondering how the non secretory group have been doing . Thanks in advance !
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Qunbin
Multiple Myeloma Discussion • July 2, 2025
Exploring Taiji and Qigong for Wellness
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Have you tried Taij and Qigong yet? You may be surprised by what it can do for you. Here are a few sources that you can try out...have fun and let me know how it goes. Research and experience show that Taiji and Qigong practice: • Relieves tension and stress • Regulates blood pressure • Improves circulation • Decreases insomnia and pain • Benefits people suffering from stiffness and injuries • Helps facilitate proper digestion • Improves the functioning of the kidneys • Lowers blood cortisol levels • Supports pain management • Repairs stress-related injuries • Helps prevent osteoporosis
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CyndiJean
Multiple Myeloma Discussion • July 2, 2025
Managing Low Mood and Anemia During Treatment?
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I began treatment for MM June 10, 2025. I am receiving Sarclisa infusion and I am prescribed Revlimid. I am considered not eligible for stem cell translant. My hemoglobin is below 10. This week’s infusion was cancelled because my infection fighting neutrophils are too low. I am completely void in mood, no ambition, interest, or desire. Even the things I used to enjoy do not interest me. I am discouraged and isolated. Is my void mood common in MM and low hemoglobin?
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Chris
Multiple Myeloma Discussion • July 2, 2025
Spouse Seeking Communication Advice
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I don't have cancer but my wife does and I am slowly learning how to cope. Where can I find advice on communicating with her, friends and family?
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DIahanna • Admin
Multiple Myeloma Discussion • July 1, 2025
Streamlining Prior Authorizations: An Update
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On Monday, dozens of healthcare providers have agreed to make fewer medical procedures subject to prior authorization while also agreeing to speed up the process. Insures are also pledging to use clearer language when communicating with patients and promised that medical professionals would review coverage denials. Keep in mind that this is not mandated by any law. This agreement does not spell out how it would would help the sickest patients or those who need expensive treatment. Most of this isn't new and some of the agreements have already been in place or required, such as under the ACA. Additionally, insurers are going to make more use of AI to help speed up the prior authorization process. The key take away is; the prior authorizations are not going away, but perhaps the process can be more efficient.