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Can't Join a Clinical Trial? Contribute to Research with Real-World Data
Posted: May 09, 2024
Can't Join a Clinical Trial? Contribute to Research with Real-World Data image

While participating in clinical trials is an excellent way to participate in CLL research, it's not possible for every patient to do so.

People living with CLL might live far away from an academic center, not fit typical qualifications for clinical trials, not have access to adequate transportation, or work a full-time job. They might have children or grandchildren to take care of at home or simply not be interested in a clinical trial at this time in their lives. These are just some of the barriers experienced by patients when considering a clinical trial. 

However, just because you can't participate in a clinical trial doesn't mean participating in CLL research is unattainable. 

By connecting your medical records to HealthTree Cure Hub, you are joining over 14,000 patients who have generously donated their anonymized data to be reviewed by researchers. More numbers in data portals such as this mean more accurate data for those investigators who are performing blood cancer research. 

Learn how to connect your records easily and quickly in the video below: 

WATCH HERE!

How Can You Help? 

Participate in CLL research as or on behalf of a CLL patient by completing one of the following: 

  1. Connect your medical records to our database in HealthTree Cure Hub today. It's quick and easy, and you can share your records with confidence that your personal information will be kept private. All information shared with researchers is anonymized. We value your privacy and your security. 
  2. Stay tuned to our News Website. Our goal this month is to help you be aware of research opportunities. We will publish articles regularly with action steps on how to participate and allow others to do the same. 
  3. Participate in surveys and studies within HealthTree Cure Hub. This can take 3-5 minutes of your time and influence the way healthcare providers treat CLL patients. Join HealthTree Cure Hub and start participating today.
  4. Share this article with those in your CLL circle! The more people who know about and participate in real-world data research, the closer we are to better outcomes for CLL patients! 
The author Audrey Burton-Bethke

about the author
Audrey Burton-Bethke

Audrey is an editor for the HealthTree Foundation. She originally joined the HealthTree Foundation in 2020 as the Myeloma Community Program Director. While not knowing much about myeloma initially, she worked hard to educate herself, empathize, and learn from others' experiences. She loves this job. Audrey is passionate about serving others, loves learning, and enjoys iced chais from Dutch Bros. She also loves spending time with her supportive husband and energetic three-year-old. 

Thanks to our HealthTree Community for Chronic Lymphocytic Leukemia Sponsors:

Abbvie
Genentech

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