Vicki Jones

Areas of expertise

• In the 20 years since her diagnosis Vicki has learned a lot about fighting myeloma. In her own words, "When I was diagnosed it felt like I was the only one in the world with this disease. After always having been a bit of a loner, suddenly I yearned for someone to talk to that understood what I was going through. Now I want to be that someone for other myeloma patients and caregivers". Vicki has been on just about every chemo regimen and has had a stem cell transplant. Every drug regimen has worked against her Myeloma but she has never been in complete remission. She recently became a nonsecretor and is learning to deal with this new diagnosis. "When I was diagnosed in 2004 it made me sad to think I would never know what it was like to grow old. Now when I look in the mirror and see all the wrinkles, I’m overjoyed!"
• “Every myeloma patient has to learn to cope with this beastly disease their own way. But I’ve found that having someone who’s been through it to talk to, compare notes, and ask questions. It makes all the difference in the world and is why I’m a Myeloma Coach.” Now facing non-secretory myeloma, Vicki is excited to lead our non-secretory myeloma community chapter.

About Vicki