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redRhinoceros
Multiple Myeloma Discussion • June 27, 2025
Increasing Dara on Maintenance: Any Success?
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I've been on daratumumab maintenace for 2 years after reaching CR. I receive dara every 8 weeks and just recently had a bone marrow biopsy which showed no plasma cells in the marrow but my clonal cells have increased from 800 to 5,000 per million. I will be asking my oncologist to increase dara to every 4 weeks. Has anyone had a similar experience of increasing dara during the maintenance phase and seeing improved results? The other option will be to add on pomalyst but I'm hoping to stick with dara only for a while.
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Lindak
Multiple Myeloma Discussion • June 26, 2025
Tips for Managing Anemia with MDS?
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Hi. I was recently diagnosed with MDS with Anemia. My doctor is monitoring my hemoglobin and will start injections with hormones if it drops below a certain level. I want to learn all I can do I can be prepared if necessary. I read that MDS typically is found in patients 60 years of age or older. But I had a second cousin who died from this when she was 26. There is a lot of cancer on my Mom's side of the family. I want to know what I can do for the anemia. If anyone has any suggestions please reach out to me. I plan on attending the session at UCF on Saturday. Linda
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Molly
Multiple Myeloma Discussion • June 26, 2025
Bone Biopsy for Slow Recovery After SCT?
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Hi My doctor wants me to have a bone biopsy as my hemoglobin levels are still struggling to come back up after my SCT back in September 24. He thinks the bone marrow may have been damaged. Has anyone else has this issue? Thank you!
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TamaraMac
Multiple Myeloma Discussion • June 25, 2025
Experiencing New Symptoms After Stopping Revlimid?
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I'm a 61 yr old Female with Kappa light chain MM in MRD status after 4 cycles of induction with VRD and a SCT in 1/2020. I was on a 10mg/then 5mg Revlimid maintenance until a few months ago. After stopping the therapy my Oncologist dropped me as a patient and I see a NP to do my labs every 3 months. I thought I would feel better after getting off Revlimid but I am experiencing severe hypotension with neuropathy and pain in my extremities. I have read about autonomic dystonia in SCT patients and I'm curious if anybody else is experiencing these same symptoms after stopping maintenance therapy?
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JohnEustace
Multiple Myeloma Discussion • June 25, 2025
Sharing a Helpful UK Myeloma Podcast
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Apologies for the confusion in reaching the outstanding U.K podcast. Call it an age thing! Usually the latest podcast is available each Thursday a.m. Ths wek should see issue 14 themyelomaminutes.podbean.com Should reach the site. Remebr there are already very good back issues I know it helps John
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NKP64
Multiple Myeloma Discussion • June 25, 2025
New High-Risk Definition: Seeking Insights
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Hi all, FYI, High‑Risk Myeloma has been Redefined by IMWG. Can we get more insights on what constitutes the profile now and it needs to be looked upon at? Thanks