Your Feed

Filter by
See content from
Back to the latest
Avatar
MHolden
Chronic Lymphocytic Leukemia Discussion • September 1, 2025
Experiencing Hair Loss on Calquence - Tips?
AI-generated title
I’m 41 yo F w High Risk CLL and on Calquence since May. In the last 6 weeks I’ve started noticing a lot of hair loss. It doesn’t seem to be a typical side effect of calquence. I’m s/p hysterectomy back in 2021 but still have my overies. Anyone else experiencing hair loss? If so has anything helped?
Avatar
NormaL1
Multiple Myeloma Discussion • August 31, 2025
Keeping My Oncologist After Moving States?
AI-generated title
I was considering moving out of state (CA to AZ) but just yesterday I realized employee ppo insurance plans are not the same as Medi-care advantage ppo plans. It seems I will not be able to keep my oncologist unless I pay out of pocket. Is there any way to move and keep my oncologist?
Avatar
Fitgmom
Multiple Myeloma Discussion • August 31, 2025
Positive Advice for a CAR T Caregiver?
AI-generated title
Hi. I will be admitted to hospital tomorrow Labor Day for Car T I am positive and focused on a good recovery. I will stay in hospital for at least first ten days. Any caregivers out here that can reassure my hubby of 54 years about his role when I come home. They stressed his looking for side effects so much that he is concerned. Any positive advice would be a great help. Thanks
Avatar
JaneF
Multiple Myeloma Discussion • August 31, 2025
CAR-T for First Relapse: Experiences?
AI-generated title
Hello everyone, I am at the stage of early relapse for the first time after being in remission for five years. (hadVRD and SCT)... I like and respect my specialist very much so no concern there. We are testing to see if I quality for a CAR-T at this early stage. Has anyone had CAR-T at the first relapse and if so what is your experience?
Avatar
Giovinazzo61
Multiple Myeloma Discussion • August 30, 2025
Talvey: Experiences and Side Effects?
AI-generated title
My husband after one month of SCT transplant failed, know he is under Talvey, has anyone is under this treatment? And how long anyone is been on this treatment, any good results? And side affects? Thank you for your experience
Avatar
Mtngirl
Multiple Myeloma Discussion • August 29, 2025
Enlarged Liver & High LFTs: Anyone Else?
AI-generated title
Hey there 👋 was wondering if anyone on here had an enlarged liver during treatment. LFT's were high...particularly Alkaline phosphatase. Thank you