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kenlevy
Multiple Myeloma Discussion • September 11, 2025
Financial Assistance Grant Now Open
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Please note that the Multiple Myeloma Health Equity Fund with the Patient Advocate Fund is now open. Grants up to $7,500 for those who qualify. Please check this out at your earliest convenience as the fund runs out quickly. The link is: https://copays.org/funds/
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kenlevy
Multiple Myeloma Discussion • September 11, 2025
PAF Financial Assistance Fund Now Open
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Please note that the Multiple Myeloma Health Equity Fund with the Patient Advocate Fund is now open. Grants up to $7,500 for those who qualify. Please check this out at your earliest convenience as the fund runs out quickly. The link is: https://copays.org/funds/
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rudiflik
Multiple Myeloma Discussion • September 10, 2025
Coping With TALVEY Taste Loss & Dry Mouth?
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Hello I finished my 10 Day step up procedure required if you are prescribed TALVEY. 8 days in the hospital ok, on the ninth day dry mouth and no taste. It has been 3 month now. I am miserable and very disappointed. Any thoughts? Thanks
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prettyorchard
Multiple Myeloma Discussion • September 10, 2025
Considering CAR-T: What Is the Experience Like?
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Have been on Pomalyst for 5 years, since remission. My light chains are going up. MM specialist is recommending Car T-cell therapy. I am 78 years old. The odds sound good, but how bad is it to go through?
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XimenaG • Admin
Multiple Myeloma Discussion • September 9, 2025
Share a Name for Our Tree of Hope
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🩸 This Blood Cancer Awareness Month, we’re building a Tree of Hope, and every name matters. Comment your name or the name of someone you’d like to honor, and together we’ll create a tree filled with strength, courage, and love. Together We Care. Together We Cure.
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BarbaraLove23
Multiple Myeloma Discussion • September 9, 2025
Struggling to Raise Counts After Chemo?
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My husband had chemotherapy five days 24 hours. He's now having problems getting his blood count up and platelets up have anyone else experienced this
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anaGazana
Multiple Myeloma Discussion • September 9, 2025
Experiencing New Hives on Kyprolis & Dara?
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I have been receiving Kyprolis infusions on day 1 and day 15, and a Dara Faspro injection on day 15 of treatment for the past three and a half years. On Thursday of last week I received both Kyprolis and Dara. Three days after the treatment I woke up with a severe case of hives. This has not happened previously. I do take Claritin the day before, day of, and day after treatment and 4 mg. of Dex the day of treatment. Has anyone experienced this?