I was diagnosed with Cll 2017 July 3rd at the age 51.

Did anybody have a bad reaction on their first injection of DARZALEX?

What on my blood test do I look at to check if myeloma is present again. I don’t see my Dr until mext week and I am little anxious and want to learn which number to look at. Thank yo in sdvance for any help.

I’m currently in remission. MRD- Out of nowhere my IGA went from non measurable to 127. A high jump. All my test show remission. In fact I just got all my bi yearly test. Bone marrow negative and MRIs all clear. The only thing I can point to is I have had non stop diarrhea. In fact severe! Could this impact IGA?

🚨 Recent News in Myeloma Treatment! 🚨 The U.S. FDA has approved Blenrep (belantamab mafodotin-blmf) in combination with Velcade (bortezomib) and dexamethasone (BVd) for relapsed or refractory multiple myeloma. ✨ Based on the DREAMM-7 trial, this new treatment option showed a 51% lower risk of death and extended progression-free survival to 31.3 months compared to 10.4 months with standard care. This approval gives new hope to patients who have received at least two prior lines of therapy. 💪 📌 Learn more about this important advancement 👉 https://healthtree.org/myeloma/community/articles/blenrep-fda-approval?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general

Has anyone had Tarvy as pre-treatment before having Car-T Cell therapy ? What was the experience like?

Follow up

I’m interested in information about skin changes that Ive been having. I have lambda light change myeloma that Ive described on another thread. Briefly, I was put ona regime that first started with REVlimid-Dara-dex. Monthly Zometa. Rash caused my oncologist to lower Rev dose. This didn’t help. Put on Pomalyst but shortly went out of remission. Am now on DkD; IVIG and Zometa monthly. During ALL of this (now about 27 weeks since first treatment) I continued to have a rash: small pimples (2-3 mm) with a zone of intense itching that is not visible on the skin surface, that can extend 2-3+ inches. When multiple pimples appear within proximity to others the “zones” overlap and thus the itching is very extensive yet unnoticeable except the dreaded and also itchy pimples. A “Vey” diagram would show the effects. Dermatologist did biopsy: results “severe hypersensitivity to medication.”Ive been treating it with Triamcinolone which offers brief relief. I have always had minor chronic itching since first treatment but a week ago it flared, again—as it does off and on regardless of the treatments, as described above. I see no correlation with any medication. About the time of the this rash flare I began to have “bruising” (what I’ve heard referred to as “liver spots” on older folks). These too began with my first thread but in minor ways. This week however looks a bit like I was beat up. Pictures of both attached. Any thoughts? Thanks! Bob

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I have SMM , diagnosed Aug 2024 Last PET and blood work was good No tumors / lesions / blood stable IGA still very high IGG low month ago But last week or so fatigue has been extreme , bone pain everywhere and waking up with bruises everywhere No falls or reasons for the bruises and vision been blurry and had migraines a couple days . But overall the fatigue is terrible . Should I be concerned of progression ? Anyone else start with Smoldering that progressed to MM that can tell me signs to be aware of ? Thank you

Hello everyone and thank you for having me, in this group my husband, was diagnosed with multiple myeloma, but he’s doing really well now he has had a stem cell transplant and Car-T transplant and is now in remission. I guess we can say but he’s doing great and I thank God every day for his journey.

I’m in a similar situation with Igg numbers particularly low after CAR-T on 12/31/2024. I’ve been taking a monthly IVIG treatment for 6 months now and been illness-free until last week when I contracted Shingles (yes, it sucks and recommend avoiding it if you can). I generally avoid people/crowds out of habit but have been slipping on the mask usage at my typical haunts. Michael

Behind every patient’s fight, there’s a caregiver whose love and strength light the way. 💛 This November, we want to honor you through our “Heart Behind the Care” campaign. If you’re ready to share your story, to inspire, comfort, and bring hope to others, please email ximena@healthtree.org Your story will be shared on HealthTree to celebrate and uplift the caregiver community. Your voice matters. Your story matters. Let’s celebrate caregivers together. TOGETHER WE CARE. TOGETHER WE CURE

I had a kyphoplasty procedure about 2 weeks ago to “fix” a compression fracture in my L4 vertebra. The intense pain from the fracture was relieved immediately after the procedure. What caught me unaware was the excruciating pain throughout my entire rib cage which started the next day and continues 2 weeks later. I still need to take OxyContin extended release pills to manage the pain because acetaminophen doesn’t touch it. Has anyone else had this outcome after a kyphoplasty and how long does it take to go away? Thanks for any helpful suggestions in advance!