Hello all, I am newly diagnosed (SMM since 10/2020) and will be on Dara, Velcade and Dex. I am starting treatment because I have osteoporosis and have multiple spine fractures (no lesions). I am leary about starting biphosphinates and even more terrified about starting treatment since I am very thin (undernourished) weighing 103 at 5'8". I am prone to nausea and worried it will make my back fractures worse. I am currently using a walker because I have a difficult time sustaining my core. Anyone has anything similar? I am very nervous about getting started.

Has anyone experienced diarrhea after CarT and while on prophylactics with Bactrim and acyclovir and BP meds? If so how was it resolved?

Help us advance CLL/SLL research! 🔬 We want to hear from you. We’ve launched a short survey to learn about your treatment goals and daily challenges. Your input helps us bridge the gap between patient needs and clinical care. Your participation is voluntary, and your data remains anonymous for research analysis. 🔗 Start the survey here: https://healthtree.org/cll/curehub/private/research/wxw9gioA0FAsBF3PSKeD?utm_source=&utm_medium=meta&utm_campaign=socialmedia&utm_content=general

Hi everyone. Has anyone wanted to discuss CAR T as a treatment option with their doctor but were told that it wasn't right for you even though you thought you were eligible? And what did you do about it?