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DIahanna • Admin
Multiple Myeloma Discussion • December 19, 2023
Copay Assistance: CPR Funds Now Open
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CPR Funds Now Open: Asthma, Diabetes Health Equity, Multiple Myeloma The specific eligibility criteria for each fund can be found at https://copays.org/funds/. For personal assistance with the application process please contact us toll-free at 866-512-3861 or visit our application portals at https://copays.org/portal/#/login, with access available for patients, providers, and pharmacies.
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grayDolphin
Multiple Myeloma Discussion • December 19, 2023
Keeping Home Safe During SCT Recovery?
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Husband having SCT on 12/22 as an outpatient. We have 3000 sq. ft house and I have someone coming to install blinds for an hour on Jan.4 in a completely different bedroom and area with its own entrance from where he will be. I will have installer mask etc. Is this safe and what about my house cleaners that come 2x a month? I need this service especially then. Also, if he is staying in a room with no houseplants , is it okay to keep them in another room? These have been here- no new ones. Please advise.
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DIahanna • Admin
Multiple Myeloma Discussion • December 18, 2023
Finding Co-pay Help: Healthwell Grant for Medicare
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Anyone on Medicare that ned additional funds to support their copay and premiums and have not already gotten funds in 12 months can go to Healthwell and apply for a 12k grant. Income must not be more thanb 500% oif Federal Poverty Levels
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DIahanna • Admin
Multiple Myeloma Discussion • December 18, 2023
Healthwell Grant for Copay and Premium Support
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Anyone on Medicare that ned additional funds to support their copay and premiums and have not already gotten funds in 12 months can go to Healthwell and apply for a 12k grant. Income must not be more thanb 500% of Federal Poverty Levels
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Akbar
Multiple Myeloma Discussion • December 18, 2023
Managing Low Phosphorus - Any Experiences?
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Hi Everyone! At the end of October 2018, I was diagnosed with Multiple Myeloma (Lambda light chain). Since my stem cell transplant on April 28, 2019, I have been taking 15MG Revlimid 21 days out of 28 days a month and receiving Velcade every two weeks as a maintenance treatment. It was about 6 months ago that my Phosphorus levels started to decrease below normal levels, so my specialist prescribed Phospha 250 Neutral to take 3 tablets a day. However, this did not increase my levels, so I was instructed to take 6 tablets a day with no improvement. After seeing my nephrologist, I was told that the issue with my phosphorus levels was caused by my kidneys disposing of phosphorus due to the heavy chemotherapy I had prior to my transplant. The doctor recommended I take two tablets of Phospha 250 Neutral three times a day and be tested for phosphate levels periodically, and when they are low, I should get Phosphate infused. Would anyone be able to tell me if they have had/have similar issues and how they resolved them?