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Doug K.
Multiple Myeloma Discussion • December 19, 2024
Experiences With Teclistamab Side Effects?
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Hi folks. I've relapsed 28 months after Carvykti and my doctor is suggesting teclistamab. I'd like to hear from those of you who have been on teclistamab. What is the real story on side effects? Thanks very much, Doug
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patrick
Multiple Myeloma Discussion • December 19, 2024
Post-ASCT Strength & Balance: What To Expect?
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Dec 2024 Hi, folks; I'm a 68yo male, eight weeks post-autologous bone marrow transplant (ABMT) after a slumbering multiple myeloma (SMM) diagnosis in 2013, active multiple myeloma (MM) diagnosis in April 2024, radiation treatment of plasmacytoma and bone lesions in May/June; Zometa infusions through Aug to help with bone lesions. Velcade/Daratumamab/Revlamid/Dexamethasone in June/July/Aug; stem cell collection in Sept and transplant Oct 14. Five days later was hospitalized for gut infections, diverticulitis and typhlitis, for 8 days. Lots of diarrhea, some nausea but no vomiting, fatigue, peripheral neuropathy (showing up as occasional sharp pains, which wake me up a night, but mostly numbness of feet, inhibiting balance and movement) and loss of 25 pounds (about 13% of body mass), much of which seems to be muscle mass. Will likely restart Zometa for bones, daratumamab and revlamid for maintenance next month. Question: Have been improving slowly in movement/ leg strength/balance; thoughts on how much improvement I can expect?
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AP
Multiple Myeloma Discussion • December 18, 2024
Searching for a Bay Area SMM Support Group
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SMM support group. I am located in the SFO bay area. I am trying to check if there is a local SMM group where people can share the info openly and collaboratively participate in various health related activities such as exercise, diet planning etc.