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HealthTree User • Admin
Chronic Myelomonocytic Leukemia Discussion • March 14, 2025
Share Your Experience to Shape CMML Programs
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Hi everyone! I hope you all are well. This year, HealthTree Foundation is expanding our efforts to support CMML patients through education, community-building, and patient-driven research. As we develop these programs, it’s essential that we incorporate the patient voice every step of the way. I’d love the opportunity to connect with you for a 30-minute video call in the next week or two to hear more about you and your experience with CMML. Your insights will play a crucial role in shaping our programs to truly reflect the needs and priorities of CMML patients. Please let me know if you would be open to this, and we can find a time that works for your schedule. I truly value each of your perspectives and would be honored to have the chance to learn from you. Hope to hear from you! Katie Braswell Director of Patient Education at HealthTree Foundation
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Wilson
Chronic Myelomonocytic Leukemia Discussion • December 13, 2024
Finding Relief From CMML Itching?
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I’ve been diagnosed with proliferative CMML in August of 2023. Watchful waiting at this time. No disease progression at this time. Does anyone have a recommendation for a treatment for the itching it causes? Thanks.
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elfie123
Chronic Myelomonocytic Leukemia Discussion • November 14, 2024
Experiencing Relapse on Decitabine?
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Hello all: I'm new to this forum. my husband was diagnosed 12/22/2024 with CMML - has been on decitabine therapy since. recently had relapse and is not doing well - doc will take another bone marrow biopsy soon to determine whether chemo not working or disease progression or both and possible transformation to AML until relapse in September 2024, he had very few side effects and lived life fully. now he is extremely weak and tired, swollen feet/ankles, low labs, pallor interested to know if anyone has similar situation. thank you.