I have a 20 year history of cll, thus far just watching. No fatigue or adenopathy to speak of. WBC now up to 200,000. Doctor wants to treat me.Only other factor is my spleen is 17.5 cm. I feel fine. Is the white count or splenic size enough reason to treat?

Advice Please:) I’m in Texas and on employer sponsored plan BCBSTX ,receiving myeloma care at UT Southwestern. I read recently that 2026 BCBS will no longer contract with UTSW. 1. Anyone on Medicare having significant problems getting their medication covered? 2. Anyone have a part D Tx Medicare plan they recommend? I’m in N Texas so I understand insurance providers use zip code for plans. I would really appreciate any/all advice. I will reach out to insurance providers as well as our sw liaison at the medical center. Thank you so much! Suzy

I was diagnosed with Cll 2017 July 3rd at the age 51.

Did anybody have a bad reaction on their first injection of DARZALEX?

What on my blood test do I look at to check if myeloma is present again. I don’t see my Dr until mext week and I am little anxious and want to learn which number to look at. Thank yo in sdvance for any help.

I’m currently in remission. MRD- Out of nowhere my IGA went from non measurable to 127. A high jump. All my test show remission. In fact I just got all my bi yearly test. Bone marrow negative and MRIs all clear. The only thing I can point to is I have had non stop diarrhea. In fact severe! Could this impact IGA?

🚨 Recent News in Myeloma Treatment! 🚨 The U.S. FDA has approved Blenrep (belantamab mafodotin-blmf) in combination with Velcade (bortezomib) and dexamethasone (BVd) for relapsed or refractory multiple myeloma. ✨ Based on the DREAMM-7 trial, this new treatment option showed a 51% lower risk of death and extended progression-free survival to 31.3 months compared to 10.4 months with standard care. This approval gives new hope to patients who have received at least two prior lines of therapy. 💪 📌 Learn more about this important advancement 👉 https://healthtree.org/myeloma/community/articles/blenrep-fda-approval?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general

Hi! We are seeking AML patients to participate in a paid, 2.5-hour virtual focus group scheduled for mid-November. Eligibility criteria: Diagnosed within the last year No treatment or receiving low-dose chemotherapy such as Ven+AZA or Decitabine Participants will receive compensation for their time and feedback. If you are interested, please fill out this form: https://forms.gle/WJrcwM7ALuoWKuN36

Has anyone had Tarvy as pre-treatment before having Car-T Cell therapy ? What was the experience like?

Follow up

I’m interested in information about skin changes that Ive been having. I have lambda light change myeloma that Ive described on another thread. Briefly, I was put ona regime that first started with REVlimid-Dara-dex. Monthly Zometa. Rash caused my oncologist to lower Rev dose. This didn’t help. Put on Pomalyst but shortly went out of remission. Am now on DkD; IVIG and Zometa monthly. During ALL of this (now about 27 weeks since first treatment) I continued to have a rash: small pimples (2-3 mm) with a zone of intense itching that is not visible on the skin surface, that can extend 2-3+ inches. When multiple pimples appear within proximity to others the “zones” overlap and thus the itching is very extensive yet unnoticeable except the dreaded and also itchy pimples. A “Vey” diagram would show the effects. Dermatologist did biopsy: results “severe hypersensitivity to medication.”Ive been treating it with Triamcinolone which offers brief relief. I have always had minor chronic itching since first treatment but a week ago it flared, again—as it does off and on regardless of the treatments, as described above. I see no correlation with any medication. About the time of the this rash flare I began to have “bruising” (what I’ve heard referred to as “liver spots” on older folks). These too began with my first thread but in minor ways. This week however looks a bit like I was beat up. Pictures of both attached. Any thoughts? Thanks! Bob

🎧 New Podcast Alert! In this plain-language episode, we break down the most important highlights from ASCO 2025 and EHA 2025, making complex myeloma updates easier to understand. 🩸 Joined by an expert patient and a myeloma specialist, we cover: MRD-driven strategies Novel immunotherapies Supportive care Precision medicine & AI MRD negativity is becoming a key therapeutic goal, and supportive, personalized care continues to improve outcomes and quality of life for people living with multiple myeloma. 🎙️ Listen now and stay informed! 👉https://open.spotify.com/episode/5u4tj34rjNMzVUdfn6Cln3

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