Good afternoon, I'm curious to hear if anyone has suffered with NK due to severe dry eye post diagnosis and SCT. I started with severe dry eye after my stem cell transplant. What I did not know is I also had NK, which muted the pain signals, kind of like neuropathy. I pushed through the blurred vision and light sensitivity, thinking dry eye is a benigne condition. When my vision became bad enough, that it was interfering with my work and quality of life, I sought out a dry eye specialist. I was immediately diagnosed with NK and told I was at high risk of losing my left eye. I had a Prokera placed that same day, which stayed on for a week. I then had a Prokera placed on my right eye the following week, and then another on my left the week after. All while waiting on an insurance approval for eye drops called Oxervate, which run $100k for an eight week supply. I am on week three of my treatment and have not noticed any improvements. I brought this up to my oncologist, but was told it is not related to my cancer or treatment. If anyone has had a similar experience or knows anyone that has, I would be interested to hear how you or they are doing. Thank you!

The Shut down has effecttively ended. The Affordable Care Act Subsidies will expire at the end of the year

I have MGUS. How do I find my M Spike number. I am new to this community.

🚨Breaking Myeloma News The FDA has approved Darzalex Faspro (daratumumab + hyaluronidase) as the first treatment for adults with high-risk smoldering multiple myeloma. This approval marks a major step toward earlier intervention and better outcomes. 🧬 Learn more: https://healthtree.org/myeloma/community/articles/25-daratumumab-darzalex-faspro-hrsmm?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general #WeCareWeCure #Myeloma #FDANews #BloodCancerResearch

Im on Talvey and seem to have lost my sense of taste. Has anyone experienced this before and how long would it last for?

💜 This November, let’s fill our community with gratitude! 💬 Share in the comments 1–3 words that express your love, admiration, or thanks for the caregivers who inspire you, whether it’s a family member, friend, or someone who has cared for you during your journey. Let’s fill this space with kindness, encouragement, and appreciation Thank you for your words!

💜 This November, let’s fill our community with gratitude! 💬 Share in the comments 1–3 words that express your love, admiration, or thanks for the caregivers who inspire you, whether it’s a family member, friend, or someone who has cared for you during your journey. Let’s fill this space with kindness, encouragement, and appreciation Thank you for your words!

I am in complete remission from IgA Kappa NDMM with a 1q gain scheduled to start 10mg Revlamid daily and monthly Dara Fastpro with Dex as a premed at 130 days post ASCT. Is it typical to start maintenance so soon?

My husband had his ASCT on Aug 28th 2025. After 4weeks his bone pain started in his arms. His pain is more only at night. The doctor suggested for a radiation consult and they said it’s not necessary now. Any one has this experience and why radiation? We have an appointment with his oncologist later this month. Should we ask for a PET scan and is bone marrow biopsy required?

Telehealth has practically completely gone away unless you are in a rural area. Accessibility has expired. The gov't shutdown has exacerbated the issue.

What is the best method to reduce swelling in my ankle?

Has anyone has had teeth implant while on multiple myeloma? I’m interesting about inthe healing process of teeth implant. I wanted to have one, but I’m kind of scared just in case it doesn’t heal properly. Any one ?????

That’s a wrap on the 2025 HealthTree Challenge: Hike + Wellness Fundraiser for All Blood Cancers! 🏔️ This incredible team of 20 participants pushed themselves physically and mentally, raising vital funds to fuel blood cancer research. Huge thanks to our 2025 Challengers and their amazing supporters for believing in HealthTree’s mission. Inspired to continue making an impact? Meet our Challengers and support them in reaching their goals! https://give.healthtree.org/event/healthtree-challenge-hike-and-wellness/e663485?c_src=socialmedia Together We Care. Together We Cure.