testing again :)

Good morning MM Warriors and Heroes (caregivers). I've been on maintenance of Dara once a month and Pomalyst 1mg 28/28 since Halloween and have been bubbling along at a low simmer. All my numbers move up or down slightly every month but all within or very near normal range. NO CRAB or other issues or side effects. Until this month's light chains result. My lambda light chains have been hovering around 9mg/l +/- 2mg/l since early last year. This week's result more than doubled from 11.56 mg/l last month to 24.3 mg/l this month. Kappas have been behaving themselves in the 6mg/l range - all within "normal" ranges. We're still waiting on the SPEP result (it's been a steady 0.9 since September) to see if anything changed drastically there. I see the local tomorrow for my regular visit and treatment and hopefully get more information and context. The "It's still within normal range" email from the nurse wasn't all that reassuring. Has anyone else seen or experienced radical jumps in their light chains when nothing else (treatment or results) stays the same? Thanks.

There’s a clinical study underway for chronic lymphocytic leukemia. Eligible participants may receive access to expert healthcare providers and the investigational study drug at no cost. Reasonable reimbursements for travel, meals, and lodging will also be provided if qualified for the study. For more information and the questionnaire, visit the study website at https://app.patientwing.com/campaign/healthtree

There’s a clinical study underway for acute lymphoblastic leukemia. Eligible participants may receive access to expert healthcare providers and the investigational study drug at no cost. Reasonable reimbursements for travel, meals, and lodging will also be provided if qualified for the study. For more information and the questionnaire, visit the study website at https://app.patientwing.com/campaign/healthtree

Has any suffered more infections while taking this treatment?

Understanding your treatment options is one of the most powerful steps you can take after a CLL or SLL diagnosis. We just released an updated CLL SLL Treatment Guide, independently developed by HealthTree, reviewed by CLL specialist Dr Adam Kittai and members of the CLL community, and sponsored by AbbVie. This guide explains • Specialist recommended treatment options • Fixed duration vs continuous therapy • How targeted therapies work • What to expect during treatment • Emerging therapies in clinical trials 📖 Read the full guide here: https://healthtree.org/cll/guides/cll-fixed-and-continuous-duration-therapy-guide/cll-treatment-purpose?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general 💛 For ongoing education and support, follow us on Facebook and Instagram: 👉 HealthTree for Leukemia 👉 HealthTree for Lymphoma Over the next few months, we’ll be sharing key insights from this guide to help you feel more confident in conversations with your care team. Together We Care. Together We Cure.

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Hello everyone. I am looking for suggestions for breakfast items for my Loma patients. Any recommendations would be greatly appreciated. Thank you in advance.

Hello I am new, not very good with technology or English. My name is Janeth, my husband was diagnosed with Multiple Myeloma last August, but he knew they was a possibility for the past two years but decided not to tell me Until the Dr said it was . He did chemo and started stem cells collection, didn’t collect enough so he took a break and he staring again on March . I try the best I can to help him but sometimes is very hard . Before being disappointed he has always being very afraid of getting sick (covid , flue, stomach virus) so now of course he’s gotten worse, I can’t see friends without feeling guilty, even outside, I wear a mask , ask the questions. Do you feel sick? Have you been close to anyone who’s being sick ? He totally takes me for granted, he also had a kidney disease so I need to cook plant base food only and measure . Like 1/4 brown rice, 2 Oz of chicken, 2 o 3 Oz of pasta ,when I forget because my memory is shot , he gets angry like how dare you forge what I need I don’t even know if I’m gonna be able to come back to this cycle cause I don’t even know how I got here

I have myelofibrosis and am not currently taking any meds but if symptoms worsen my hematologist/oncologist has mentioned Ojjaara as an option. Is anyone currently taking this & any side effects?