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blackHamster
Multiple Myeloma Discussion • March 15, 2023
Bivalent Primary Series Dosing After Transplant?
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I am 67 days post SCT and looking for the COVID primary series but having difficulty. The pharmacist I talked to said they were phasing out the original vaccine as the primary series and are moving to using the bivalent vaccine as the primary series of vaccine. Has anyone done this? If so, what is the time between doses? Is it the same as the original: three doses at least 1 month apart and then the last dose two months after those doses.
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marjorie97@ymail.com
Multiple Myeloma Discussion • March 15, 2023
Considering Stopping Treatment & Doctor's Response?
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I began treatments July 2021 And have gone through several. I'm currently on DAX Moving from every week , to 2 weeks, now Coming up to once a month. I know you move to different treatments when one stops. I don't plan on continuing treatments When this 1 no longer works. My specialist says if I stop treatments he will no longer see me. QUESTION: Has anyone Heard of this? My oncologist Whom I take treatments from says he'll still see me. I'm just tired of the treatments. And excited to see what God Will do. Either way I win. If God takes me home to be with Him or if I stay. I'm just tired of putting this stuff in my body. And it's side effects. Even though this treatment doesn't seem as bad as others. Thank you all
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emeraldElk
Multiple Myeloma Discussion • March 14, 2023
Managing Chemo With Low Platelets?
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Hi everyone! I am new here and live in the United Kingdom (London). I was first diagnosed with multiple myeloma in 2016, went into remission after chemotherapy and transplant but now relapsed and back to chemotherapy again. Unfortunately, this is not working well for me now as my very low platelets blood 🩸 is disturbing the process. As at now my platelets count is below 30 and my consultant does not want to continue the chemotherapy when is below 24. The normal platelets count of a normal human being is supposed to be: 1500-4500. You can see that this number of mine is with great concern. Traditionally, I have a history of low platelets. To cloth during bleeding is just not there and I fear this could even send blood to my brain and have stroke. Platelets transfusion was done ones but only pushed it up by 13 points and went back low the next week. Can any one help me?
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Janine
Multiple Myeloma Discussion • March 14, 2023
Navigating Hip Replacement with Myeloma?
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Has anyone had a hip replacement? Did you ask for a ClonoSEQ test be performed on the hip joint that was removed? Any advice or suggestions regarding the pre and post surgery, recuperation?Coordination of maintenance treatment and taking Xgeva? Thanks!
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Brenda R
Multiple Myeloma Discussion • March 13, 2023
Revlimid Timing: Morning or Night Tips?
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Hi everyone, I am new here and about to start RVD. I would like to know if you take Revlimid in the morning or at night and does the time of day matter?
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Olly58
Multiple Myeloma Discussion • March 13, 2023
Next Steps After Failed CAR-T: Anyone Else?
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A bit confused. Recently went through CAR-T, with no response. It did not work. It seemed like a perfect solution. I am Extramedullary, and NonSecretory. My numbers were stable and low. After CAR-T my kidney numbers started to drop. PET CT, MRI showed plasmacytomas surrounding both kidneys and Adrenal glands. 2 a day radiation for 4 days helped this issue. In the mean time my Myeloma numbers started to climb. After some recovery from radiation I am on Elotuzumab, Pomalidomide and Dex. I have no idea if i am still Nonsecretory, just trying to get in a better place. Anyone else have similar characteristics.
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Vickijones
Multiple Myeloma Discussion • March 11, 2023
Future of My 19-Year-Old Stem Cells?
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Fred Hutch wants to know if they should keep storing my stem cells or if they should be moved elsewhere or discarded. I don’t suppose they’re still viable after nearly 19 years in the freezer. But I’m wondering if they would be of any use for research or anything. Any thoughts?
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HealthTree User • Admin
Multiple Myeloma Discussion • March 10, 2023
Join the HealthTree 5K: Virtual or In-Person
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The HealthTree Moves Columbus 5K and 1 mile event is open for registration. This will be a virtual and an in person event so don't let distance discourage you from registering. Click on the link below for more information. Feel free to PM me if you have any questions or concerns Also, please send me an email if you would like to volunteer for the event. michelle@healthtree.org https://www.facebook.com/events/1274031416532390/?acontext=%7B%22event_action_history%22%3A[%7B%22mechanism%22%3A%22your_upcoming_events_unit%22%2C%22surface%22%3A%22bookmark%22%7D]%2C%22ref_notif_type%22%3Anull%7D
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PeterC
Multiple Myeloma Discussion • March 9, 2023
Marrow Collection During Knee Replacement?
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Hi, I am a high risk MGUS/BGUS patient who undergoing a partial total knee replacement in 2 weeks. Is there any standard protocol for salvaging the marrow &/or aspirate from the reaming of the femur or tibia for onncological analysis? Thanks, Peter