I began with the four drug induction chemo Jan thru April 2024. Stem Cell Transplant in May 2024. 100 days off all chemo to recuperate. Starting Sept. 2024 began Revlimid 10mg. 21 days, and Darzalex FasPro 1x a month. I was okay for a long time. Last few months in a downward spiral with fatigue, neuropathy, loss of appetite, etc. I saw oncologist yesterday. He gave me a Revlimid vacation for one month. Has anyone else done this? I am hoping I feel better. He assured me it will help me feel better. The neuropathy in my feet has spread almost up to my knees. Not pain, just numbness and tingling. Thanks for listening. PS. If anyone is interested in names, I am Pheba1 because my great grandmother was named Pheba. So she is Pheba2. Tracing back a full 8 generations on my direct maternal line, my 8th grandmother was named Pheba. She is Pheba3. I did genealogy at the request of a genetic counselor after I was diagnosed with uterine cancer in 2004. Pheba3 probably died from childbirth complications. According to records I could find she had 10 children. My name is Sharon

Hi everyone. I have high risk MM but currently MRD- (great news). I have been experiencing severe whole body itching. Has anyone else experienced this? And if you have, what is your remedy! When it happens I lather up with lotion which does give some relief. I am not on any maintenance medication. I'm currently on: Bactrim, Valacyclovir, Iron, B12, Potassium, Hydrochlorothiazide and Oxycontin. The itching is not every single day but at least 3-4 days a week. Any help is appreciated. Thank you Denise

There have been some changes in my Medicaid this year and my co-pay has increased. Digging into my hospital billing I discovered that the charge for the monthly dose of Darzalex has increased by 75% ! I can’t seem to get an explanation from them after almost 2 months. Anyone else notice or experiencing a cost increase in this ? I’m on maintenance and doing well but this is stressing me quite a bit. Thank you and best wishes for Wellbeing 🙏

Hello Everyone. last Aug. 2025, was diagnosed with a solitary Plasmacytoma in the L2. Radiation treatment only reduced the lesion by 20% and the medical team wants to attack this one spot systemically with chemo/immunotheopy for the next year. Does anyone know of a successful, next step in treating a radiation resistant solitary Plasmacytoma? ( before its possibly becomes multiple myeloma or vertebrae collapses)

Hi everyone, has anyone used remote monitoring devices for CAR T or bispecifics? If so, do you know what company was used? Or what facility you are receiving care from? I'm curious to know if that was a good experience for you. Did it connect into your EHR? Did it connect with your care team? Interested in hearing from you.

CPR Funds Now Open: Multiple Myeloma Health Equity The specific eligibility criteria for each fund can be found at https://copays.org/funds/. For personal assistance with the application process please contact us toll-free at 866-512-3861 or visit our application portals at https://portal.copays.org/#/login, with access available for patients, providers, and pharmacies.