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TimJohnson
Multiple Myeloma Discussion • June 25, 2024
Managing Low Protein Levels: Your Tips?
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I'm halfway through my third cycle of DRVd induction and my IgG has dropped over 80%, light chains have almost equalized and are within the normal range. The specialist is even using the term "partial remission." Which is all good and encouraging. My weekly blood draw now shows my overall protein levels are below normal and the local oncologist is recommending boosting plant-based protein intake. I munch partially-salted mixed nuts in the morning to stymie the Rev nausea and have Greek yogurt on my breakfast kibbles instead of milk. What are other good sources of protein or supplements? I want to up my protein, not bulk out with muscle or fat gain.
Thumbnail for High Response Rates With T Cell Engagers in Follicular Lymphoma | Ryan Jacobs, MD | EHA 2024
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High Response Rates With T Cell Engagers in Follicular Lymphoma | Ryan Jacobs, MD | EHA 2024

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Thumbnail for CAR-T Therapy in Patients 75+ with Relapsed/Refractory DLBCL | Pierre Bories, MD, PhD | EHA 2024
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CAR-T Therapy in Patients 75+ with Relapsed/Refractory DLBCL | Pierre Bories, MD, PhD | EHA 2024

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Thumbnail for Outcomes in High-Risk Subgroups After Ibrutinib and Venetoclax for CLL | Ryan Jacobs, MD | EHA 2024
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Outcomes in High-Risk Subgroups After Ibrutinib and Venetoclax for CLL | Ryan Jacobs, MD | EHA 2024

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Barbie
Chronic Myelomonocytic Leukemia Discussion • June 24, 2024
Sharing My Journey: Watch and Wait at 78
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Hi I’m cmml -1 diagnosed 5/2023 doing wait and c no stem cell said to old I’m 78 in good health anyway just going with flow this is to rare 4 in a million they don’t know much some treatment but not for me yet stay in touch everyone
Thumbnail for Phase 1b-2 Dose Escalation Study Sonrotoclax + Dexamethasone | Binod Dhakal, MD | EHA 2024
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Phase 1b-2 Dose Escalation Study Sonrotoclax + Dexamethasone | Binod Dhakal, MD | EHA 2024

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Thumbnail for CARTITUDE-4 Subgroup Analysis of Functional High-Risk Patients | Luciano Costa, MD | EHA 2024
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CARTITUDE-4 Subgroup Analysis of Functional High-Risk Patients | Luciano Costa, MD | EHA 2024

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Thumbnail for Mezigdomide, Tazemetostat, and Dex in RRMM: Results from CA057-003 Trial | Luciano Costa, MD | EHA 2024
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Mezigdomide, Tazemetostat, and Dex in RRMM: Results from CA057-003 Trial | Luciano Costa, MD | EHA 2024

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Thumbnail for MAJESTIC-1 Study - A Subgroup Analysis of High-risk Patients | Luciano Costa, MD | EHA2024
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MAJESTIC-1 Study - A Subgroup Analysis of High-risk Patients | Luciano Costa, MD | EHA2024

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Thumbnail for The Role of Combination FDG PET Plus Whole Body MRI for Staging  | Claudio Cerchione, MD | EHA 2024
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The Role of Combination FDG PET Plus Whole Body MRI for Staging | Claudio Cerchione, MD | EHA 2024

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blueBadger
Multiple Myeloma Discussion • June 23, 2024
Sharing My Experience With Black Seed Oil
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I am in complete remission from mm for a few years now after going through different regimes and a failed transplant. Now I have no maintence Revlimid or Dex as it was very hard on me. About a year into my journey I read an article about a lady in Tuscany with smouldering mm who was having great results when adding black seeds to her diet. Her numbers got so much better. I started with sprinkling the seeds in my food until I read that the Black Seed Oil Or Black Cumin Seed Oil is more effective than the seeds. I started taking a wee bit as it can upset your stomach. I now take 1/2 tsp twice a week to this day and will continue to do so. It enhances your medication. It helps it to be most effective. My numbers improved greatly with it. I wouldn’t be without it. That’s my story. I’m just telling you what helped me so very much along with my medication and treatment. Hope this helps someone.
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llogue82
Multiple Myeloma Discussion • June 22, 2024
Sharing My Successful Stem Cell Harvest
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Got to 4.6 million for my stem cell harvest and store. Took 3 days and by last day I seemed to be reacting more to the meds they give you to help release the stem cells. Fluid retention and fatigue. My Dr said that was good. Line came out yesterday and so glad to be back home. Good to know they are there if I need them