Hi im 44 and have finished my induction DVrd 4 rounds. I have 2 kids under 3 and we want another. Life’s good at the moment I have never had any symptoms and I’m MRD -ve. Am I being foolish by postponing my stem cell transplant?

Hello, everyone, I'm stopping in to share my story in hope it might help someone to keep going. My CAR T Cell therapy, CARVYKTI, was in March 2023 and this coming month of September 2024 will be 18 months since I've been chemo free. I have had to receive IVIG immunotherapy every month since but that beats receiving chemo anyday. My note today is to share that I must resume treatment in September. It's back. 8 years fighting back. I am thankful for going on 18 months chemo free and am now researching to decide what treatment I should go on next. There are options, and for this I am also grateful. If possible, please share with me what treatment plan you're on or thinking about if the myeloma relapsed after CAR T cell therapy. It will help me in my decision making. Thank you, all, for listening, and for your help. Truly. Miriam

I HAVE HAD CHRONIC DIARRHEA SINCE CHEMO IN 2017. I CAN FIND NO CURE RECOMMENDED AFTER NUMEROUS CONSULTATIONS AND OUTREACH. ANYBODY ELSE HAVE THIS OR AM I UNIQUE. ART

Anyone here been on Venetoclax now? They are prescribing it for me? Wonder if my insurance will cover it since not FDA approved?

Hey, friends! In less than 2 hours (noon, Eastern) Cancer Active Support Group. (register below) This month we're talking about our experience at the HealthTree Coach summit in July. Let's talk about CureHub, why you should participate, and why all cancers should replicate this model of inclusivity and general wellness. If you haven't registered, register. Meet me there. https://throwing-bones.org/cancer-active-support-group/ Kenny

Hi. My husband had car-t in December, and is doing quite well. I'm just trying to understand what comes next. Is a bi-specific always the next step after a car-t, or are there other options? Thanks.

Hi Here Hans from the Netherlands. Sins March I’m diagnoses MM. Now in a cure with Daratumumab, Lenalidomide and Dexamethason. After a month 44%, ter month 68 % and now almost 100 % less Cancer cello. Now every 14 days the Dara. Although everything in live is changed, I’m glad the treatment is going good so far. Anyone also on Dara ?

Is anyone losing their hair after car t therapy? Mine is falling out in brush fulls and don’t understand why. I’m wondering if it’s from taking acyclovir for so long. It’s not common but side effects for acyclovir says it’s possible.

Hello all. A few days ago was the 1 year anniversary of... The second clinical trial I was on was Cevostamab. It was different in that it was 1 treatment every 3 weeks, 17 treatments = 1 year. After that treatments stop so they can see how durable it is. ... not being on a treatment and my MM is still UNDETECTABLE

Would love to share after-effect information with anyone who is on a talquetamab (Talvey) regimen.

I have a question about Revelimid. Any success stories while on this chemo medication. I just had a SCT in April that was difficult, developed a rare infection, colitis — which has finally resolved and have been left with chronic neurogenic body pain — it is managed with gabapentin. I am in remission, praise God but now they want to do 10 mg of Revelimid orally, 3 weeks on and 1 week off. The side effects seem deterring to me…I would not start until September…Any wise words or experiences are appreciated. Thanks in advance!