Managing fatigue can be challenging, however, gentle exercise along with health coaching may help improve the symptoms of fatigue. This study is being done to gather information regarding the effectiveness of a mindfulness-based physical activity program with remote monitoring and health coaching in ≥65 year-old specifically for patients suffering from fatigue in multiple myeloma. If you would like to participate, tap the link below: https://healthtree.org/myeloma/community/mayo-clinic-fitness-study

Can someone help me interpret my Myeloma FISH panel

Hi! We're looking for newly diagnosed myeloma patients OR patients on their second line of therapy who have had an autologous stem cell transplant. Compensation will be provided for your time. If you'd like to share your experience, please react to this message or comment 'I'm interested.

Just got put on my 4th round of meds to combat MM. Was put on Cyclophosphamide in June and had extreme fatigue and a bloated stomach, which causes me to get very winded. After 2 months found that I went through all that for nothing. It did not work and my light chains went even higher. Now on Carfilzomib, Pomalyst and Dex. Getting scared and need to do whatever I can to get this under control. What do I need to eat? I suppose it tastes terrible. I'm 75 and have had MM for over 8 years.

Hi I am a 75 yo women with multiple myeloma for 6 years I was on Lenalidomide 10 mg now due to feeling tired I am on 5 mg what is the outcome of getting a lower dose it is safe to go back to 10 mg please any one with knowledge of this I would like an I put thanks very much. Gondola

Hola a todos¿que tal? A mi madre le diagnosticaron mieoma multiple,el cual le ha causado insuficiencia renal,siguiendo un tratamiento de hemodialisis. Por favor me podríais recomendar que suplementos o dieta seria más beneficiosa para ella.Muchas gracias a todos.Un fuerte abrazo.

Has any one in this group been diagnosed with Amyloidosis Light chain ? Does this website ever discuss this disease since it’s so linked to MM? If not does anyone have suggestion about different forums. Ty!

I was diagnosed with Multiple Myeloma February 22, 2024. I didn’t know I had cancer until my arms were hurting and the pain kept getting worse and in February I went to the ER and had xrays done. Both arms were broken and that’s when cancer was seen. I did chemo through injections and radiation on my arms after having surgery on both. I am now doing tests to prepare for stem cell transplant in October. Is there anyone who has gone through this procedure? Advice for after my hospital stay? TIA

I am a 72 year old female who was recently diagnosed with multiple myeloma this January 2024. I have completed my induction phase of DVD and now on maintenance care. My doctor is adding lenalidomide 5mg for 21 days , off 7 days with Darzalex 1x per month and 4mg dex 1x per week. I have chose not to go for a SCT at this time. I would like to get a feedback on lenalidomide since this is a new med for me. I appreciate your inputs.

Has anybody had experience with Talquetamab (Talvey) after effects?

I am 63 year old ND MM Patient, although my lead doctor still says it's smoldering. I am seeing him next week, and after my loast blood test, I think he will recommend treatment. The protocal he is advocating is: Daratumumab plus RVD. Seems pretty standard. The question is side effects. Anyone have personal experience? Thx! Moshe

After 12 weeks of drug treatment, I reached remission. My case was stage 1. While I successfully reached remission, I now have a blazing case of peripheral neuropathy. Feet are on fire, sleep is difficult, and 4 fingers are cold and restrictive inn use. The culprit in this is Velcade. Anyone taking drug treatment should be aware of this. I am convinced that reduced doses of Velcade would be preferable to the terrible neuropathy I now suffer. LEN PAULSEN Brentwood TN

My wife was diagnosed with multiple myeloma in July 2024. She is 61 years old. She used to exercise an hour a day spinning and swimming prior to the diagnosis. She may be getting stem cell transplant by the end of the year in Pittsburgh at Hillman Cancer Center. We are looking for feedback from someone who has gone through stem cell transplant recently. We are looking for information regarding side effects especially after discharge from hospital, recovery, ability to go back to gym, traveling, socializing etc. Thank you.