Was diagnosed in 2004 with MGUS, 2005, smoldering myeloma. Since '05 only being monitored every 3 months with blood work, Igg is now at 5400, was on Zometa then switched to Xgeva(prolia). Now lesion found on front posterior rib and doc wants me to go on the 3-4 cocktail of meds and then to a SCT, don't really want to do the SCT, 2 questions for everyone here, how many opted out of SCT and just stayed with the cocktail of drugs and how your doing, (2) how many are on Xgeva compared to Zometa now and which are better in your opinions.

Basic question here: post BMT my cytogenetics/bone marrow biopsy showed no evidence of disease (awaiting MRD) and all labs normal. Was told that disease will come back, my question is: is the cancer cells somewhere in the bone marrow so low that biopsy does not see it and will not see it until it grows and starts to crowd out the normal cells in the marrow?

Thought this was an app to help with blood cancers . Looks like a cancer Facebook feed.

Before I started treatment three months ago I was weight training One day a week doing deadlifts, bench press, and other heavy weight exercises. I am ready to go back To the weights. Obviously will need to modify these workouts. Does anyone have any idea the best type of Weight workouts to do with myeloma? I am sure Skeletal and rib strengthening is most important. Any thoughts?

Hi All, What are some of the signs of a relapse after SCT? My Kappa's started to move up since early march and now it's at 45 mg/dl. That is causing the ratio to go up around 3.5. My M protein is still undetected. Before the Kappa's started to go up my maintenance treatment was stopped for 3 weeks due to flu. Thank you!

Share Your Exercise Experience - New Research Study Hi everyone, we wanted to let you know about an important new study looking at physical activity in blood cancer patients. Whether you're highly active or find it challenging to exercise, your experience is valuable to this research. About the Study: Quick 8-minute survey Led by Memorial Sloan Kettering Cancer Center & HealthTree Foundation Focuses on activity levels AND barriers to exercise All responses are confidential The results could help develop better support systems for patients struggling with physical activity during treatment and recovery. Who Can Participate: Age 18+ Diagnosed with blood cancer or precursor condition Any activity level is welcome https://healthtree.org/myeloma/curehub/private/research/YS80V1G0YXT0iL8q3gMT?utm_source=social+media&utm_medium=connect&utm_campaign=physicalactivitysurvey&utm_content=general Let's help researchers understand our community's real experiences with physical activity. Every response matters! Feel free to ask any questions below or contact support@healthtree.org.

Share Your Exercise Experience - New Research Study Hi everyone, we wanted to let you know about an important new study looking at physical activity in blood cancer patients. Whether you're highly active or find it challenging to exercise, your experience is valuable to this research. About the Study: Quick 8-minute survey Led by Memorial Sloan Kettering Cancer Center & HealthTree Foundation Focuses on activity levels AND barriers to exercise All responses are confidential The results could help develop better support systems for patients struggling with physical activity during treatment and recovery. Who Can Participate: Age 18+ Diagnosed with blood cancer or precursor condition Any activity level is welcome https://healthtree.org/myeloma/curehub/private/research/YS80V1G0YXT0iL8q3gMT?utm_source=social+media&utm_medium=connect&utm_campaign=physicalactivitysurvey&utm_content=general Let's help researchers understand our community's real experiences with physical activity. Every response matters! Feel free to ask any questions below or contact support@healthtree.org.

Share Your Exercise Experience - New Research Study Hi everyone, we wanted to let you know about an important new study looking at physical activity in blood cancer patients. Whether you're highly active or find it challenging to exercise, your experience is valuable to this research. About the Study: Quick 8-minute survey Led by Memorial Sloan Kettering Cancer Center & HealthTree Foundation Focuses on activity levels AND barriers to exercise All responses are confidential The results could help develop better support systems for patients struggling with physical activity during treatment and recovery. Who Can Participate: Age 18+ Diagnosed with blood cancer or precursor condition Any activity level is welcome https://healthtree.org/myeloma/curehub/private/research/YS80V1G0YXT0iL8q3gMT?utm_source=social+media&utm_medium=connect&utm_campaign=physicalactivitysurvey&utm_content=general Let's help researchers understand our community's real experiences with physical activity. Every response matters! Feel free to ask any questions below or contact support@healthtree.org.

Share Your Exercise Experience - New Research Study Hi everyone, we wanted to let you know about an important new study looking at physical activity in blood cancer patients. Whether you're highly active or find it challenging to exercise, your experience is valuable to this research. About the Study: Quick 8-minute survey Led by Memorial Sloan Kettering Cancer Center & HealthTree Foundation Focuses on activity levels AND barriers to exercise All responses are confidential The results could help develop better support systems for patients struggling with physical activity during treatment and recovery. Who Can Participate: Age 18+ Diagnosed with blood cancer or precursor condition Any activity level is welcome https://healthtree.org/myeloma/curehub/private/research/YS80V1G0YXT0iL8q3gMT?utm_source=social+media&utm_medium=connect&utm_campaign=physicalactivitysurvey&utm_content=general Let's help researchers understand our community's real experiences with physical activity. Every response matters! Feel free to ask any questions below or contact support@healthtree.org.

I thought some might be interested in this event. One of the doctors we recently did a webinar with is speaking. If you are in or around Hicksville New York take a look.

My husband was diagnosed with high risk (stage2)Multiple Myeloma Dec 2024, blood results from his annual physical & asymptomatic, golfer, fit & age62. He’s been on 4 drug regiment with minimal side effects, Dara, Dex, Velcade & 25mg Revlimid for 4 cycles & then after his restaging with results not where they want for SCT scheduled in June, they added 2 more cycles, will wait for another bone marrow biopsy, it’s been 15% since the start of his treatment (no change) his M-spike has gone down from 3.6 to 1.9 but still not zero. They are now suggesting he will need to have Cytoxan chemo treatment (12hr IV) 2weeks before his T-Cell collection. Has anyone had Cytoxan & how did you handle the treatment & managing side effects?