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Qunbin
Multiple Myeloma Discussion • July 2, 2025
Exploring Taiji and Qigong for Wellness
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Have you tried Taij and Qigong yet? You may be surprised by what it can do for you. Here are a few sources that you can try out...have fun and let me know how it goes. Research and experience show that Taiji and Qigong practice: • Relieves tension and stress • Regulates blood pressure • Improves circulation • Decreases insomnia and pain • Benefits people suffering from stiffness and injuries • Helps facilitate proper digestion • Improves the functioning of the kidneys • Lowers blood cortisol levels • Supports pain management • Repairs stress-related injuries • Helps prevent osteoporosis
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CyndiJean
Multiple Myeloma Discussion • July 2, 2025
Managing Low Mood and Anemia During Treatment?
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I began treatment for MM June 10, 2025. I am receiving Sarclisa infusion and I am prescribed Revlimid. I am considered not eligible for stem cell translant. My hemoglobin is below 10. This week’s infusion was cancelled because my infection fighting neutrophils are too low. I am completely void in mood, no ambition, interest, or desire. Even the things I used to enjoy do not interest me. I am discouraged and isolated. Is my void mood common in MM and low hemoglobin?
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Chris
Multiple Myeloma Discussion • July 2, 2025
Spouse Seeking Communication Advice
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I don't have cancer but my wife does and I am slowly learning how to cope. Where can I find advice on communicating with her, friends and family?
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DIahanna • Admin
Multiple Myeloma Discussion • July 1, 2025
Streamlining Prior Authorizations: An Update
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On Monday, dozens of healthcare providers have agreed to make fewer medical procedures subject to prior authorization while also agreeing to speed up the process. Insures are also pledging to use clearer language when communicating with patients and promised that medical professionals would review coverage denials. Keep in mind that this is not mandated by any law. This agreement does not spell out how it would would help the sickest patients or those who need expensive treatment. Most of this isn't new and some of the agreements have already been in place or required, such as under the ACA. Additionally, insurers are going to make more use of AI to help speed up the prior authorization process. The key take away is; the prior authorizations are not going away, but perhaps the process can be more efficient.
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Sqoozy
Multiple Myeloma Discussion • July 1, 2025
Coordinating Cataract Surgery With MM?
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Has anyone here needed catarac surgery with their multiple myeloma. Did you get a recommendation from your oncologist or did you use your regular ophthalmologist ?
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Andrew
Multiple Myeloma Discussion • July 1, 2025
San Diego Specialist: Any Recommendations?
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I was diagnosed with MGUS one year ago. I have since moved from Madison, WI to Oceanside, CA. Can anyone recommend a good hematologist/oncologist in the San Diego area? Thank you, Andrew
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MM2022
Multiple Myeloma Discussion • July 1, 2025
My Carvykti Journey: Managing CRS on Day 8
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Day 8 carvikti hospitalized for CRS toci treatment works well This is a harsh perhaps even grueling process which I elected in order to get to a point of remission with no additional treatments. I think it will be very important to be monitored not only for disease progression, which I don't expert, but for the longer term side effects and problems identified in cartitude 4 trial.
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Lola
Multiple Myeloma Discussion • July 1, 2025
Navigating ACA Insurance & Costs?
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Hi Diahanna, could you point me to your resources on how to navigate ACA policies? How much will it cost for myself and spouse to have good coverage (meyloma level coverage), including premiums, deductibles, prescriptions etc. I’m still 8.5 years from Medicare and have to find a way to get care that won’t bankrupt me. I should get 1.5 years on Cobra but still have to find care for the remaining 7 years. Thank you
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Lola
Multiple Myeloma Discussion • July 1, 2025
Seeking MM Specialist in Johannesburg?
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Can anyone recommend a MM specialist in Johannesburg? I’m moving there and need to establish with a new doctor. It’s just maintenance care at the moment 🤞 but still need to get blood tests and lenalidomide refills regularly. Thanks!