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kitel88
Multiple Myeloma Discussion • September 2
Help with first treatment
I was recently diagnosed with myeloma, and my doctor is suggesting a stem cell transplant. After reading online, it looks like there are more modern treatments like CAR-T. Does anyone have experience with that as their first treatment?
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may33jen
Multiple Myeloma Discussion • August 31
Talvey
I recently finished my step up dosage of Talvey and experienced all the side effects of loss of taste, skin peeling, dry mouth, skin rash with itching. As I was getting ready for another dose in 2 weeks I came down with vertigo and gait imbalance. My doctor took me of Talvey and I am still dealing with vertigo and ataxia. Has anyone experienced this? Talvey can cause neurotoxicity to the cerebellum.
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Lyn4750
Multiple Myeloma Discussion • August 31
Lenalidomide side effects
I’ve been on Lenalidomide 15 Mg 21 on 7 off for 8 months. Have constant yellow dysentery on the 21 days on. Tapers off on the 7 off. Finally had a new doctor prescribe Colestipol tablets twice a day. Some relief the first month. They cut back the Lenalidomide to every other day but Colestipol not working. Is this a sign I should stop the Lenalidomide? What have others experienced.
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DebC65
Multiple Myeloma Discussion • August 27
Acupuncture?
Has anyone tried an Oncology Acupuncturist for BIPN? Do these nerves in the legs and feet ever regenerate? I refuse to take another drug…Gabapentin was prescribed.
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Daddie
Multiple Myeloma Discussion • August 27
Kyprolis
Experiences with this drug