Hi, I’m product manager here at HealthTree Foundation. Our team has been hard at work, and we are excited to be releasing a new platform to better help our users find content and discover our tools on the HealthTree platform. We anticipate launching early May. Some of you may have noticed many of the Connect groups are no longer appearing. All posts in these groups should now be under the general discussion group. Thank you for your patience while we make this transition! Additionally, we plan to open up testing on the new platform in the coming weeks. If you are interested in being one of the first to test out the platform, please leave a comment, and we can let you know when it's available for testing. We look forward to this next step at HealthTree! 😃

Hi all, My husband is going on 4 years since being diagnosed. Myeloma attacked his kidneys when he was diagnosed and was in renal failure. They missed it with Covid. The great news is after dialysis for months and then healing, his creatinine is in the normal range now. A true medical miracle. He has two types 414 and another mutation. He had a stem cell that lasted 7 months and car-t that lasted 4 months. Both difficult treatments. He always remains so positive. He has been on a combination of Talq * Dara and he has a fantastic Dr at Cleveland Clinic. Dr Jack Khouri. He is the absolute BEST. Treatment has worked but has come at a huge cost. His nails are deformed and he hasn’t been able to taste in 2 years with the exception of orange Crush. Is anyone else on this combination and what side effects have you experienced?

I had joined about 5 different groups. On this discussion but now the only one that shows up is newly diagnosed and others that I didn’t join. One I joined was relapse myeloma. Side effects Cant remember the rest but they aren’t there when I look at groups I’ve joined. Anyone else have this problem? Thank u

“I wanted to not only know what treatment options were available for my husband, but also to understand them.” As a myeloma caregiver, Ann Bailey found herself in a world she knew nothing about. She wasn’t just looking for data; she was looking for a way to make sense of the path ahead. By using HealthTree’s Cure Hub to track labs and explore options, Ann found what she describes as “an absolute gift.” It’s a tool that does more than show results; it eases the mind and helps caregivers ask the right questions during appointments. Watch her full story on the Myeloma Awareness Month page: htree.org/myelomaawarenessmonth2026

Has anyone experienced bad skin rash around the Velcade injection spot and elsewhere on the body ? If yes how did you manage ? I am on quadruplets induction therapy second month and I am experiencing pretty bad skin rash with Velcade. 1st month it went all over the abdomen and even under the armpits. We had to stop Velcade for 4 weeks … Second month - We slowed the injection pace and it helped contain the rash around the injection spot. Still after the 4th jab the skin rash has again migrated to the armpits… My haematologist was suggesting intravenous injection instead of subcutaneous… Would appreciate any feedback. Update - I now have done 2 - IV Velcade injection and so far all good 👍🏽. No skin rash .

Has anyone gained a lot of weight since the have been diagnosed with MM? My weight may be contributing to more bone pain. If so has it been discussed to use Zepbound or Wegovy to help lose weight? If you have been prescribed one of these which one and how did you do?