Today’s the day – UTAHGIVES is here 💙 It’s a 24-hour celebration of generosity across Utah, and we’re coming together to support blood cancer patients and families. Our goal is to rally as many unique donors as possible and show the strength of this amazing community—no matter where you’re joining from. At HealthTree, we’re working every day to accelerate research, provide trusted tools, and connect patients with the support they need. And we truly can’t do it without you. If you’re able, we’d love your support today. Give here: https://www.utahgives.org/organization/Crowdcare-Foundation And if donating isn’t possible, sharing this with others makes a huge difference too 💙 #UtahGives #GiveWhereYouLive #GiveTogetherGrowTogether

I'm on maintenance therapy with lenalidomide and isatuximab, 1 year after asct. There is possibility of switching from isatuximab biweekly to monthly. Any of you have done that? Is it as effective? How long you have been on monthly?

$10,000 available through Patient Advocate Foundation: https://copays.org/funds/multiple-myeloma/ Household Income Requirements: 500% or less of Federal Poverty Guideline (FPG) (adjusted for Cost of Living Index (COLI) and number in household) Insurance Requirements: Medicare, Medicaid, or Military Benefits Residency Requirements: Must reside and receive treatment in the United States. Also $8000 from Health Well Foundation for Medicare patients: https://www.healthwellfoundation.org/fund/multiple-myeloma-medicare-access/ Household Income Requirements: 500% or less of Federal Poverty Guideline (FPG) (adjusted for Cost of Living Index (COLI) and number in household) Insurance Requirements: Medicare Federal Poverty Guidelines for 2026 Annual Income Persons in Family 500% 1 $79,800.00 2 $108,200.00 3 $136,600.00 4 $165,000.00 5 $193,400.00 6 $221,800.00 7 $250,200.00 8 $278,600.00

I’m will be participating in the trispecific clinical trial at University of Penn and wanted to know if anyone else has and your experience. Thank you.

I am in a good remission, 6 years ago I had RVD, no bone marrow transplant and have been on Rev 10 mg for maintenance. I had a Bone Marrow Biopsy 16 months ago which showed 116 MM Cells per Million. Not MRD but pretty close. My month labs come back as negative in blood work but Dr. Is suggesting we complete another BMB to see if we can get an MRD result which could start the clock on the end of Rev maintenance. Not sure I'm in the mood for another BMB at the moment, for those of you that are in CR but not MRD neg what is your frequency of BMB . I know everyone is different and every DR has a varied approach but just looking for some feed back on what other people are being asked to do as far as Frequency of Biopsy. Thank you and wishing you all wellness and healing.

Has anyone out there been changed to Pomalidamide from Pomalyst? I have been on Pomalyst for 9 years and doing great and I hate to change now.Has anyone been on Pomalidamide for awhile and still having the same results. I know they say they are the same drug but sometime not quite . Any insight would be greatly appreciated. Thank you JC

Since I had a clean PET scan and I am MRD negative through my bone biopsy and blood work. does the 17 P deletion still apply to me?

Breckenridge pharmacy has a copay card for those who qualify for help covering the cost of Pomalidomide. Please go to this link for information and for application. https://pomalidomidecapsules.copaysavingsprogram.com/#:~:text=Under%20the%20program%2C%20qualifying%20patients%20may%20pay,Program%20assistance%20per%20prescription%20and%20annual%20benefits

Did you know that with TotalAssist, patients can use their grants for medication copays, coinsurance, and deductibles; health insurance premiums; office visit charges; and treatment-related administration charges? TotalAssist’s comprehensive approach reflects how patients actually experience care—and helps remove the financial barriers that often prevent or interrupt treatment. Join in at 1:00pm ET on Tuesday, May 12, to learn more about how TotalAssist can support you, your loved ones, or your patients during our free webinar, Empowering patients through financial help: Introducing TotalAssist.

Bactrim is given as a prophylactic antibiotic to prevent serious lung infections. Please share your experience with this drug, concerning its side effects and the fact that it can do much damage to the gut biome. I understand there are alternative antibiotics offered in difficult cases, and I'd appreciate it if anyone can share their experiences if they've tried those alternatives. I've been taking Acyclovir, an antiviral is also given as a prophylactic, for years without problems. But I'm concerned about the side effects of Bactrim. How have patients here been able to maintain their Bactrim therapy? I've read that alternatives to Bactrim could be Pentamidine, Atovaquone or Dapsone. Pentamidine is given by nasal spray and both it and Atovaquone do not appear to be too damaging to the gut biome. Has anyone here tried these alternatives? Any comments would be appreciated.