Any other young multiple myeloma patients here? I'm 36, was diagnosed last year at 35. I've done 3 cycles of RvD for induction therapy and ASCT. BMB and blood tests showed no detectable levels of disease, VGPR (though they don't offer MRD testing in Eastern Canada). When I was diagnosed my hematologist told me on average patients my age treated in Canada with standard risk could expect about 15 years survival. Anyone care to share their experiences with a MM diagnosis at a (relatively) young age?

Hi all, My husband started Talquetamab + Dara in February. He was getting both, every two weeks. It has had so many awful side effects. He lost his taste in February. We were told once he went down to one a month with the Talquetamab, his taste would start to come back. He is into his second month getting the Talquetamab once a month and still has no taste. It’s also causing his hemoglobin to stay low and require shots of Procrit. Can anyone share experience of when their taste started to come back on Talquetamab and how long it took? Also, did you have any issues with low hemoglobin?

Looking for patients dealing with aggressive large Bcell lymphoma that has traveled to the colon and rectum. 2nd dose of RCHOP to be administered this week. Anyone experience this rare Dx? And if so, treatment success and failures. Thank you!

I will have my stem cell transplant soon. Has anyone had success with cold capping to save their hair from the melphalan chemo?

How long before radiotherapy helps with bone pain? I've been fighting my insurance company to cover radiation for a large and very painful lytic lesion on my sternum, and perhaps naively assuming that the pain would start to lessen right away. But I had the first of five 3DCRT sessions yesterday, and the pain is significantly worse now. For those of you who had radiation to help with pain, how long did it start to work? Days, weeks? Did particular pain meds help more than others? I'm not supposed to apply ice or heat. Thanks in advance for anything you can remember.

Clinical Trials work I just completed 124 months of a clinical trial. That’s 10 years 4 months. IT WORKED. I am in remission but staying on the drug Ninlaro to keep me in remission. God is so good to me as are my caregivers, Dr. Stockerl-Goldstein and his staff.

Wondering if Flow cytometry can confirm MRD negativity or does it have to be confirmed by Clonoseq? thank you!

Has anyone tried the off shelf drug Fenbenazole? Other cancers have been successful with this drug.

Has anyone had issues with shallow breathing at night and your oxygen dropping? I think after all of my rib damage at initial diagnosis, I now don't do well breathing deep at night. I caught this with my sports watch indicating my oxygen was dropping to 84 intermittently throughout the night. I have a sleep study scheduled. Not sure if it is due to my rib damage or from the induction therapy.

Hi I am in early stage of remission and for the past 6 mths have broken out in a rash on my foot which will not go away. As soon as it gets hot it itches and breaks out in pimply like sores. Dr had given me creams which helps a little bit then it comes back. Is this common.

Hello, I am going to be starting the process of CarT with Carvykti & will be going to City of Hope or UPENN. If there is a member / members who have had CarT with Carvykti at UPENN & would be open to talking with me about their experience, I would appreciate it! Thank you

Hello from korea! My dad finished the transplant a few weeks ago. My dad has a high risk factor of 1q21 amplification, he was classified as a high risk group because B2M was over 7 and plasma cells were 80% when he diagnosis. Fortunately, it responded well to VRD and B2M levels dropped to normal range and reached m protein 0. Is anyone else doing clinical trials for CO43923? It's a clinical trial that uses both cevostamab and lenalidomide for maintenance therapy after the first transplant. There's not much information because it's phase 1b. Should we do clinical trials?