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NKP64
Multiple Myeloma Discussion • December 17, 2024
Concerned About Low Platelets: Advice & Experiences?
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During the routine CBC test of my father, I found the platelet count at (118) slightly lower than expected (150) and the purpura observed over the past couple of days. The oncologist has been informed. He is on VPD. Is this concerning and if any specific steps are needed for improving the platelets? Can I have some more info on platelet count and would appreciate if more experiences were shared around it to keep myself informed. Many thanks
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Pheba1
Multiple Myeloma Discussion • December 16, 2024
Experiencing Slow IGA Recovery After IVIG?
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Has anyone else had IVIG transfusions for immune system after stem cell transplant? I had SCT may 28, 2024. I started maintenance chemo in September. The treatment wiped out immune system, a common occurrence. I learned there are 3 markers, IGA (sinuses and stomach) IGG, (viruses and bacteria), and IGM, (general immunity). I had two treatments a month apart. IGG went from 66 to 792. IGA marker will not budge. Anyone else have this issue. Does it just take longer for IGA to go back to normal? Thanks.
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Kneyed
Multiple Myeloma Discussion • December 15, 2024
I’m just starting my remission maintenance regime after 7 cycles of induction RVD+Dara. Feeling very
I’m just starting my remission maintenance regime after 7 cycles of induction RVD+Dara. Feeling very grateful about the progress this past year. Question does everyone usually get to continue the lower dose 10mg Revlimid for 21 day cycle or 30 days continuously? I’ll be getting one shot of DarZalex a month too hopefully 🙏🏼 Awaiting the results of my scans + BMB. Blessings and Good Health everyone 💪🪧
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KooGS123
Multiple Myeloma Discussion • December 14, 2024
Managing Bone Disease: Seeking Recommendations?
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Hi Everyone, I'm two months past a stem cell transplant, doing well energetically, in remission. However I have a lot of bone disease in my spine, ribs and sternum, really bad (I've lost 6" in height). I am getting zometa, taking supplements, doing exercises. Can anyone recommend a hospital, doctor or PT program that specializes in dealing with bone disease from myeloma? Thanks.
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alexandra.sazonova.prokouran@gmail.com
Multiple Myeloma Discussion • December 14, 2024
Managing Denosumab ONJ: Treatment and Pain?
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Hi friends, Does anyone have experience with osteonecrosis of the jaw (ONJ) caused by denosumab? What treatments have been most effective for managing early-to-medium stage ONJ? Also, how do you deal with the pain associated with it? Thank you so much in advance🙏🏼
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ChioOsuna
Multiple Myeloma Discussion • December 13, 2024
Your HealthTree Data Made an Impact at ASH
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At ASH this year, researchers presented groundbreaking data from collaborative studies with HealthTree. Your participation in Cure Hub made this possible, showcasing the power of real-world data in driving meaningful advancements in care and research. Thank you for being an essential part of this progress! #ASH24 #HealthTree #PatientAdvocacy #InnovationThatSavesLives #ASHMeeting #Hematology #BloodCancer #MedicalResearch #CancerCare #ASH2024
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ChioOsuna
Diffuse Large B Cell Lymphoma Discussion • December 13, 2024
Sharing Our Community's Impact at ASH 2024
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At ASH this year, researchers presented groundbreaking data from collaborative studies with HealthTree. Your participation in Cure Hub made this possible, showcasing the power of real-world data in driving meaningful advancements in care and research. Thank you for being an essential part of this progress! #ASH24 #HealthTree #PatientAdvocacy #InnovationThatSavesLives #ASHMeeting #Hematology #BloodCancer #MedicalResearch #CancerCare #ASH2024
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ChioOsuna
Multiple Myeloma Discussion • December 13, 2024
Celebrating Patient Impact at ASH24
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✨ Every breakthrough, every discovery, every step forward at #ASH24 began with YOU! As we wrap up another groundbreaking ASH Annual Meeting, we're reminded that behind every clinical trial, and every presentation stands a patient and their family who made it all possible. Watch as leading experts acknowledge the true heroes of blood cancer research - the patients who generously give their time, share their experiences, and participate in studies that push us closer to a cure. At HealthTree, we're committed to amplifying your voice and ensuring patients remain at the heart of research. Together, we're not just witnessing the future of blood cancer treatment - we're helping create it. #BloodCancer #CancerResearch #ASH24 #HealthTree #CancerCommunity #HopeForCures