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emeraldAntelope
Multiple Myeloma Discussion • December 21, 2024
Success With Rituximab for Low Platelets?
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Thrombocytopenia #50, 30, 28, 26, Dxed 2018 Remission since 2019 Revlimid maintenance Bone marrow aspiration and biopsy normal. cancer in remission. They are going to treatment me with rituximab and have taken me off revilimid. Anybody have success? How many treatments? 65 yo male with multiple myeloma.
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JaniceRenee
Multiple Myeloma Discussion • December 21, 2024
Sharing a Resource for Mobility and Motivation
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Hello, again. I hope this is ok. I want to share a resource with you. Most of us have physical issues that can make self care hard. But they also make it more of a necessity. Making the time and sustaining the motivation for self-care can be challenging, especially this time of year. I worked with Katie last summer. Her calm, genuine presence compelled me to show up. Once I did, she rocked my world and changed my life. She began by helping me walk again. She gave me hope, when I had none. Her sincere compassion and deep understanding of human physiology are only matched by her relentless dedication to helping others live their best lives. Whether you are an accomplished athlete and/or someone dealing with chronic pain and disability... Katie will meet you where you are and can take you where you want to go. Katie truly cares and will pull you to do all you can do, with her knowledge, wisdom and heart. And you can do all this remotely from the comfort of your own home. Her own story is pretty inspirational, too. Plus, she has great soundtracks. : ) Check out Krasinski Performance on Facebook or visit: https://www.katiekrasinski.com/ She welcomes your questions.
Krasinski Performance

Krasinski Performance

Remote holistic health education & fitness performance services which address your mind, body, and soul. 1 on 1 sessions, group exercise classes, and educational classes are offered.

https://www.katiekrasinski.com/
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JaniceRenee
Multiple Myeloma Discussion • December 21, 2024
Understanding IgG & Elevated Kappa/Lambda Ratio?
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Hello, friends. I'm grateful for this resource. I am 62 years old and was diagnosed with MGUS this past year. I'm one of the lucky ones. My numbers have been rising, but they are still in the benign realm. I don't yet understand the numbers, but with help, eventually I will. For now, I know I have IgG monoclonal gammopathy with an elevated Kappa/Lambda ratio. Does anyone else have this and/or do you know what it means? I'm going to discuss it with my doc next visit, but that's not for a couple months and I am curious now. Also, anyone in or near Northern Colorado? Gratefully, Janice Gratefully, Janice
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Doug K.
Multiple Myeloma Discussion • December 19, 2024
Experiences With Teclistamab Side Effects?
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Hi folks. I've relapsed 28 months after Carvykti and my doctor is suggesting teclistamab. I'd like to hear from those of you who have been on teclistamab. What is the real story on side effects? Thanks very much, Doug
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patrick
Multiple Myeloma Discussion • December 19, 2024
Post-ASCT Strength & Balance: What To Expect?
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Dec 2024 Hi, folks; I'm a 68yo male, eight weeks post-autologous bone marrow transplant (ABMT) after a slumbering multiple myeloma (SMM) diagnosis in 2013, active multiple myeloma (MM) diagnosis in April 2024, radiation treatment of plasmacytoma and bone lesions in May/June; Zometa infusions through Aug to help with bone lesions. Velcade/Daratumamab/Revlamid/Dexamethasone in June/July/Aug; stem cell collection in Sept and transplant Oct 14. Five days later was hospitalized for gut infections, diverticulitis and typhlitis, for 8 days. Lots of diarrhea, some nausea but no vomiting, fatigue, peripheral neuropathy (showing up as occasional sharp pains, which wake me up a night, but mostly numbness of feet, inhibiting balance and movement) and loss of 25 pounds (about 13% of body mass), much of which seems to be muscle mass. Will likely restart Zometa for bones, daratumamab and revlamid for maintenance next month. Question: Have been improving slowly in movement/ leg strength/balance; thoughts on how much improvement I can expect?