Hi. I was just referred here by a local support network. I was diagnosed with AML on Sept 13, 2025. I went to the ER because I had a mild pneumonia, yet I could not walk 20 feet without being winded. Turns out my hemoglobin was very low and I received a blood transfusion right away, before being admitted to the hospital. After 2 rounds of chemo, I am in remission with genetic mutations still present. Actually, I haven't had a bone marrow biopsy since I started round 2 so maybe they are gone? I'm scheduled to have a BMT in December and am doing all the preliminary tests that will clear me. I'm 58 and I have a 13 year old that I would like to see reach adulthood. I try not to dwell on that, but it is my motivation to go through with BMT. I try to just do what is in front of me and focus on the best possible outcome, but I feel like I need to prepare myself to be in the hospital for 4-6 weeks, so I am looking into the future a little bit. For those of you that have had BMT, what are some of the things you found valuable to pack for your time in the hospital? Did you opt to bring your own clothes or wear a hospital gown? Any other words of wisdom are greatly appreciated as well. Thank you all for being here. I hope that in the future I will be able to offer support to others.

Hello everyone, I know this is a bit short notice, but I’ve been busy reaching out to many people that I couldn’t post here until today. I am my wife’s caregiver, and I want to share a little about her incredible determination. She never stops seeking answers and doing everything she can to contribute toward a better quality of life and hopefully, one day, a cure! Last year, with the support of a wonderful group of friends and our family (myself and our two daughters - 13 and 17), she created an event to raise funds for research. Since HealthTree has been very supportive of her and has been helping to accelerate this important work, we're excited to continue making a difference together and to run this event once more. The Myeloma Awareness Movement – Zumba Party campaign goal is “LET’S MOVE until a STOP is put to this disease, to keep coming back!” Just like multiple myeloma, Zumba can be very challenging for most people, but with the right strategy and support we can find a way to overcome the difficulties and to adapt! Moreover, Zumba’s rhythm is contagious, happy, energetic, and fun, and we all need that! (Trust me, I have zero skills, but I had a blast last year). Respecting health conditions and abilities, your Zumba moves can be anything: the dance itself, just singing, or stomping your feet, clapping your hands, etc. The most important thing is to MOVE and feel GOOD! How you can support this campaign: Join us in Toronto and spread the word: Make a donation and bring your family and friends! We can host up to 240 people, and advance registration is required here: Myeloma Awareness Movement - Zumba Party 2025 Join online OR at your own pace and spread the word: If you can’t attend in person, you can still dance Zumba! Make a donation, follow the event live, and/or watch the recorded video using the respective links on the donation page. Support by donating and spreading the word: If Zumba isn’t your thing, you can still contribute, and invite others to do the same! Donation page: The Myeloma Awareness Movement - Zumba Party 2025 - Campaign Thank you so much for taking the time to read this message. Your support truly makes a difference! TOGETHER WE CARE. TOGETHER WE CURE. (Zumba Challenge - If you feel comfortable, take a picture or make a short video of your move(s), share it on your social media and hashtag #HealthTreeForMyeloma)

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I am in complete remission from IgA Kappa NDMM with a 1q gain scheduled to start 10mg Revlamid daily and monthly Dara Fastpro with Dex as a premed at 130 days post ASCT. Is it typical to start maintenance so soon?

Our 31 year old daughter has a terrible gag reflex (has all of her life) and is really nervous about getting a feeding tube placed after her Stem cell transplant:-( She is afraid she is just going to throw-up the second they try to place it! She knows that this has been shown to allow her other organs to basically not work so hard and so she can just get the nutrition she needs, but is really freaking out about this! Any suggestions or recommendations? Anyone else have this issue?

Do you know anything about financial care in Australia?

📣 Calling everyone on the Mountain & West Coast! 🌄🌊 Join us for a free virtual event: “From Diagnosis to Decisions: Taking Charge of Your AML Care” 🩺✨ TOMORROW Oct 29, 2025 at 2:00 PM EDT 🔗 Sign up now: https://healthtree.org/lymphoma/community/events/oct25-mountain-westcoast-aml-diagnosis-decisions Dr. Brian Jonas will walk us through the basics of AML, the importance of genetic testing, and how to advocate for the best care with your healthcare team. You’ll also be introduced to local resources, support organizations, and others in your area who understand what you're going through. 👉 Can’t make it live? No worries, we’ll send a recording to all registered participants.

Has anyone had any experience with only 4 cycles of chemo due to disseminated fungal infection ? This is for my 17 yo daughter