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Managing MM in His 80s: Our Story
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I'm Marsha. My husband was diagnosed with MM (Light Chain K/L) in October, 2020. As if having a raging pandemic roaring through the world wasn't enough of a challenge, this came into focus. He'd felt tired and achy all summer, but his PCP didn't notice anything was wrong until during an EKG (prescribed by my husband's cardiologist), the technician was shocked by the discovery of a softball-sized bruise on my husband's chest. That led to further investigation, and a CAT-scan revealed irregular bone masses, and a fracture in his sternum. The next thing we knew, we were in the oncologist's office, and after more testing (blood labs, PET scan, biopsy), the diagnosis came quickly, and he's been in treatment ever since.
He was 83 when this all started; he's 86 now. His age was a determinant in not advising SCT for treatment. He took Velcade/Dex/Cytoxan bi-weekly for the first year of treatment. His labs improved significantly at 8 months, so our oncologist removed the Dexamethasone from the plan. At 14 months, he was in remission, so the doctor took Cytoxan out of the mix, too. Within months after the end of a full year in remission, the oncologist swapped out Velcade for a 10mg daily dose of Revlimid (actually the generic, lenalidomide), which seems to be working well.
I've had to shoulder the bulk of activity around the house and with our finances since this all began. Because there is a double-whammy of age-related cognitive decline and "chemo brain," I need to be present at all his medical appointments, and pay close attention to what he's doing, especially where his meds are concerned. It's a process, and I learn as I go.
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