Good evening, My husband was diagnosed 2023 and is now considered non secretory. Currently on Kpd with most lesions showing no activity but new ones appeared on last PET. Looks like we may be heading towards CARVYKTI CAR T. My question to this group in particular is what was your experience if you received CART T therapy? Thanks!

Hello 😊 I was just wondering what everyone’s suggestions/experiences are with the stem cell transplant process. Mostly after coming home from after. Thank you

I wanted to share this Interesting article in Nature Magazine about research to alter T cells in the body vs shipping them off to a manufacturer to reengineer. https://www.nature.com/articles/d41586-025-01570-6

Please note that the Patient Advocate Foundation has just opened up co-pay relief for MM. Criteria is 500% or less of Federal Poverty Level, Medicare, Medicaid, or Military benefits and reside in the US. Max is $7,500/yr. Complete details can be found at: https://copays.org/funds/multiple-myeloma/

Please note that the Patient Advocate Foundation has just opened up co-pay relief for MM. Criteria is 500% or less of Federal Poverty Level, Medicare, Medicaid, or Military benefits and reside in the US. Max is $7,500/yr. Complete details can be found at: https://copays.org/funds/multiple-myeloma/

I am 65 years old and was diagnosed in September 2014. I have posted before but agree having your age and diagnosis date is a good idea. I am seeking information regarding the CAR T treatment. I am scheduled for the CAR T the end of July. Because I am not close to a treatment center I will need to stay in a hotel. I am hoping people can share their experience and precautions you took to eliminate exposure to germs and any other helpful suggestions. My understanding is your immune system is compromised, and precautions need to be taken. I went through a stem cell transplant in 2015 at the same facility and stayed in a hotel, so I am aware of precautions, but this is a different treatment. Thank you

Hello everyone. I was diagnosed in June 2024 and still in the watch and wait stage. I am glad to see these post about the foods we eat. I think in the last 6 months I have been eating more junk food. And I have been feeling pain in different parts of my body.

Experience with selinexor?

How do I go virtual to the MM suport meeting in Cranston, RI

My husband had a successful stem cell collection a few weeks ago. However, his doctor told him that some of the cells contained myeloma. Does this mean that these few myeloma cells will be transplanted along with the stem cells when he gets his transplant?

I think people that post should state their age and when they were diagnosed and when they started treatment. I was followed for years but diagnosed with myeloma 4 years ago at age 78. I have responded very well to first line treatment and am in remission. But at my age we did not think stem cell transplant made sense.

Anyone have t17 tp53

#healthtree #myeloma #aml There is a saying I found that helped my husband and I get through many treatments for AML, maybe someone here will find it worthwhile. It goes like this: "You never know how Strong you are until being strong is the only choice you have" I find this to be so true in my life and I see it in so many coaches that I have had the pleasure to interact with.

Good evening, everyone. I had ASCT last year in September. I had to stop lenalidomide due to low platelets. Recovery is going well except my platelets are low. My Oncologist administered ploygam in March over a few days but still no improvement. I started rituximab beginning of May and so far, the highest i got was 20. I am very concerned and anxious, has anyone experienced this or how have you increased your platelets? I am in South Africa by the way.

Can someone explain Car T treatment to me please?

In case you haven’t seen this promising article in today’s NY Times, here’s a link: https://www.nytimes.com/2025/06/03/health/multiple-myeloma-car-t-immunotherapy.html?unlocked_article_code=1.ME8.QeiE.RUqxJd54IPHP&smid=nytcore-ios-share&referringSource=articleShare

My coverage ends Late June 2025. I would like to know if I will be eligible after that date Joyce snedeker