I was considering moving out of state (CA to AZ) but just yesterday I realized employee ppo insurance plans are not the same as Medi-care advantage ppo plans. It seems I will not be able to keep my oncologist unless I pay out of pocket. Is there any way to move and keep my oncologist?

Out of curiosity, how many people also have thyroid issues

Hi. I will be admitted to hospital tomorrow Labor Day for Car T I am positive and focused on a good recovery. I will stay in hospital for at least first ten days. Any caregivers out here that can reassure my hubby of 54 years about his role when I come home. They stressed his looking for side effects so much that he is concerned. Any positive advice would be a great help. Thanks

Hello everyone, I am at the stage of early relapse for the first time after being in remission for five years. (hadVRD and SCT)... I like and respect my specialist very much so no concern there. We are testing to see if I quality for a CAR-T at this early stage. Has anyone had CAR-T at the first relapse and if so what is your experience?

Please define m spike?

My husband after one month of SCT transplant failed, know he is under Talvey, has anyone is under this treatment? And how long anyone is been on this treatment, any good results? And side affects? Thank you for your experience

Hello everyone! Unfortunately I caught a cold. I have a runny nose and cough. No fever yet. When should I inform my doctor?

Hey there 👋 was wondering if anyone on here had an enlarged liver during treatment. LFT's were high...particularly Alkaline phosphatase. Thank you

I'm a Multiple Myeloma patient living in Utah, currently on Cobra. I will move to Medicare December 2025 and do NOT qualify for MediGap policy because not yet 65. I'm looking for Medicare Advantage plans that cover the Huntsman Cancer Institute and either the UofU Doctors or (Intermountain Healthcare Doctors that I currently see since, at present I am on SelectHealth). After placing a call to Select Health Medicare dept, was informed they do NOT cover the Huntsman Cancer Hospital and it's doctors on their Medicare Advantage plans. Wondering if anyone else has experience with this? I've been getting conflicting information regarding SelectHealth Medicare Advantage Coverage. Would like suggestions on Medicare Advantage plans in UT that might be a good fit for the 1 month (December 2025) that would cover my Revlimid and possibly my Doctors and Huntsman. And suggestions moving forward into 2026. Maybe one of the members has some experience with this or can recommend a resource that might be helpful.

Hi everyone. I have just found this group and responded to Jenny's question about treatment vs watch and wait but thought I would share what I wrote of my experience so far in case it was helpful for others. I was diagnosed with MGUS by accident in 2021 and after a bone marrow biopsy last January was diagnosed high risk SMM by my local oncologist who I had been seeing since MGUS diagnosis. I then saw two myeloma specialists and they had very different opinions. One (Northwestern Memorial) felt I was already in overt MM due to the trajectory over the four years of my IgA and I should start the four drug induction toward a SCT. The other (Mayo) felt my four years of data and lack of any CRAB symptoms showed smoldering and recommended increasing monitoring and waiting on treatment. My local oncologist agreed with the Mayo doctor and I did as well based on my own research but it was a hard decision. The Northwestern doctor had advised if I monitored for a bit to get monthly blood draws and my specialist recommended blood draw every three months and whole body low dose CT every six months in order to intervene with treatment before developing any CRAB symptoms. Due to concerns from the Northwestern doc's opinion I opted to do the blood draws every six weeks and the CT every six months. So far my blood test results have been fairly stable and I just had the CT on Monday and there were no signs of lesions. I feel great and am doing everything I can to stay as healthy as possible - nutrition, sleep, exercise, stress level. Of course it is stressful to "watch and wait" but I did not want to start a treatment I might not need for "years" until it was necessary even though this of course goes against advice for most other cancers which you want to treat as early as possible so it is a bit of a mind messer. I understood that once I started treatment I would not feel as I do now and would probably have to stay on some meds the rest of my life barring advancements in treatment such as some results with Car-t cell therapy. My specialist said they typically see a slow drop in the hemoglobin towards anemia as the first sign of progression so that is one of the areas I look at when my results come in. So that's where I am at currently. Barb