Please note that the Multiple Myeloma Health Equity Fund with the Patient Advocate Fund is now open. Grants up to $7,500 for those who qualify. Please check this out at your earliest convenience as the fund runs out quickly. The link is: https://copays.org/funds/

My ratio for kappa Lambda has increased for the last two months. Now is at 2.5. I have been in remission for almost a year. Does this means it is coming back?

I’m on 10mg Revlimid and have developed eye sores. Has anyone else had this side effect?

Hello I finished my 10 Day step up procedure required if you are prescribed TALVEY. 8 days in the hospital ok, on the ninth day dry mouth and no taste. It has been 3 month now. I am miserable and very disappointed. Any thoughts? Thanks

Have been on Pomalyst for 5 years, since remission. My light chains are going up. MM specialist is recommending Car T-cell therapy. I am 78 years old. The odds sound good, but how bad is it to go through?

Has anyone received a kidney transplant after an ASCT? How long did you have to wait? Is anyone on dialysis as a result of the mm?

🩸 This Blood Cancer Awareness Month, we’re building a Tree of Hope, and every name matters. Comment your name or the name of someone you’d like to honor, and together we’ll create a tree filled with strength, courage, and love. Together We Care. Together We Cure.

My husband had chemotherapy five days 24 hours. He's now having problems getting his blood count up and platelets up have anyone else experienced this

I have been receiving Kyprolis infusions on day 1 and day 15, and a Dara Faspro injection on day 15 of treatment for the past three and a half years. On Thursday of last week I received both Kyprolis and Dara. Three days after the treatment I woke up with a severe case of hives. This has not happened previously. I do take Claritin the day before, day of, and day after treatment and 4 mg. of Dex the day of treatment. Has anyone experienced this?

💬 Living with multiple myeloma? We’d love to hear your story. Join us in Atlanta this fall for an in-person focus group where patients share their treatment journeys, challenges, and what has influenced their care. 📍 Location: Marriott Atlanta Northwest Galleria, 200 Interstate North Parkway SE, Atlanta, GA 30339 📅 Session 1: September 16, 2025 📅 Session 2: October 21, 2025 ⏰ 10:00 AM – 2:30 PM (lunch included) ✅ Who can participate: -Diagnosed with multiple myeloma -Experienced at least two relapses -Completed two or more lines of therapy -Have not received CAR-T therapy 💡 What to expect: -Two group sessions (~4 hours each) -A chance to share your experiences openly and be heard -Pre-read materials for the second session -Compensation for your time 👉 Interested? Contact Cynthia at cynthia@healthtree.org to register or learn more.

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Many patients with MM In UK, Europe and USA are using Low-dose naltrexone (LDN) has been used in integrative and functional medicine. It helps with energy, with pain and helps the immune system. Has anyone used Naltrexone? I am curious if this really helps. .

I have been receiving Kyprolis infusions on day 1 and day 15, and a Dara Faspro injection on day 15 for the past three and a half years. On Thursday of this week I received both Kyprolis and Dara. This morning, three days after the treatment, I woke up with a severe case of hives. This has not happened previously. Has anyone experienced this? I do take Claritin the day before, day of, and day after treatment.

I was diagnosed in December 2023 with Smoldering Multiple Myeloma after having chronic bronchitis, kidney failure, and peripheral neuropathy with blood tests, urine tests, and a kidney ultrasound. It was going to be 6 months before I could see the hematologist at the cancer center and I just had surgery in 2022 for a big thyroid/parathyroid tumor hanging out in my throat making it so I couldn't talk or swallow. I was scared and this was War. I started doing research online at the NIH and for books by cancer survivors and what they did. Research in2023 at NIH Complementary Medicine Division showed that Traditional Chinese Medicine and Acupuncture were useful in treatment of cancer. I found a licensed Chinese practitioner in town. So I bought a 20 pack of acupuncture/moxibustion treatment and take a monthly energy and cancer tea. Then, some readings that led my care, Radical Remissions: Surviving Cancer Against All Odds by Kelly Turner Ph.D. and most important, How To Starve Cancer...And Then Kill It With Ferroptosis by Jane McClelland. Her "Stem Cell Metro Map" on p.333 with legend on p.334 really breaks down alternative treatments for any type of cancer, even CML. You can look up your type of cancer in the Index, but I suggest reading the book and her journey. One note, menbendazole is used in the UK and fenbendazole in the US. Anyway, I'm feeling well, my labs show lambas at 26 and no more multilpe myeloma in my bone marrow biopsy! Now I just have mild MGUS.

Is anyone here on the Iberdomide trial? How is it going?