Has anyone had any experience with only 4 cycles of chemo due to disseminated fungal infection ? This is for my 17 yo daughter

Advice Please:) I’m in Texas and on employer sponsored plan BCBSTX ,receiving myeloma care at UT Southwestern. I read recently that 2026 BCBS will no longer contract with UTSW. 1. Anyone on Medicare having significant problems getting their medication covered? 2. Anyone have a part D Tx Medicare plan they recommend? I’m in N Texas so I understand insurance providers use zip code for plans. I would really appreciate any/all advice. I will reach out to insurance providers as well as our sw liaison at the medical center. Thank you so much! Suzy

Did anybody have a bad reaction on their first injection of DARZALEX?

What on my blood test do I look at to check if myeloma is present again. I don’t see my Dr until mext week and I am little anxious and want to learn which number to look at. Thank yo in sdvance for any help.

I’m currently in remission. MRD- Out of nowhere my IGA went from non measurable to 127. A high jump. All my test show remission. In fact I just got all my bi yearly test. Bone marrow negative and MRIs all clear. The only thing I can point to is I have had non stop diarrhea. In fact severe! Could this impact IGA?

🚨 Recent News in Myeloma Treatment! 🚨 The U.S. FDA has approved Blenrep (belantamab mafodotin-blmf) in combination with Velcade (bortezomib) and dexamethasone (BVd) for relapsed or refractory multiple myeloma. ✨ Based on the DREAMM-7 trial, this new treatment option showed a 51% lower risk of death and extended progression-free survival to 31.3 months compared to 10.4 months with standard care. This approval gives new hope to patients who have received at least two prior lines of therapy. 💪 📌 Learn more about this important advancement 👉 https://healthtree.org/myeloma/community/articles/blenrep-fda-approval?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general

Hi! We are seeking AML patients to participate in a paid, 2.5-hour virtual focus group scheduled for mid-November. Eligibility criteria: Diagnosed within the last year No treatment or receiving low-dose chemotherapy such as Ven+AZA or Decitabine Participants will receive compensation for their time and feedback. If you are interested, please fill out this form: https://forms.gle/WJrcwM7ALuoWKuN36

Has anyone had Tarvy as pre-treatment before having Car-T Cell therapy ? What was the experience like?

Follow up

I’m interested in information about skin changes that Ive been having. I have lambda light change myeloma that Ive described on another thread. Briefly, I was put ona regime that first started with REVlimid-Dara-dex. Monthly Zometa. Rash caused my oncologist to lower Rev dose. This didn’t help. Put on Pomalyst but shortly went out of remission. Am now on DkD; IVIG and Zometa monthly. During ALL of this (now about 27 weeks since first treatment) I continued to have a rash: small pimples (2-3 mm) with a zone of intense itching that is not visible on the skin surface, that can extend 2-3+ inches. When multiple pimples appear within proximity to others the “zones” overlap and thus the itching is very extensive yet unnoticeable except the dreaded and also itchy pimples. A “Vey” diagram would show the effects. Dermatologist did biopsy: results “severe hypersensitivity to medication.”Ive been treating it with Triamcinolone which offers brief relief. I have always had minor chronic itching since first treatment but a week ago it flared, again—as it does off and on regardless of the treatments, as described above. I see no correlation with any medication. About the time of the this rash flare I began to have “bruising” (what I’ve heard referred to as “liver spots” on older folks). These too began with my first thread but in minor ways. This week however looks a bit like I was beat up. Pictures of both attached. Any thoughts? Thanks! Bob

🎧 New Podcast Alert! In this plain-language episode, we break down the most important highlights from ASCO 2025 and EHA 2025, making complex myeloma updates easier to understand. 🩸 Joined by an expert patient and a myeloma specialist, we cover: MRD-driven strategies Novel immunotherapies Supportive care Precision medicine & AI MRD negativity is becoming a key therapeutic goal, and supportive, personalized care continues to improve outcomes and quality of life for people living with multiple myeloma. 🎙️ Listen now and stay informed! 👉https://open.spotify.com/episode/5u4tj34rjNMzVUdfn6Cln3

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I have SMM , diagnosed Aug 2024 Last PET and blood work was good No tumors / lesions / blood stable IGA still very high IGG low month ago But last week or so fatigue has been extreme , bone pain everywhere and waking up with bruises everywhere No falls or reasons for the bruises and vision been blurry and had migraines a couple days . But overall the fatigue is terrible . Should I be concerned of progression ? Anyone else start with Smoldering that progressed to MM that can tell me signs to be aware of ? Thank you

Hello everyone and thank you for having me, in this group my husband, was diagnosed with multiple myeloma, but he’s doing really well now he has had a stem cell transplant and Car-T transplant and is now in remission. I guess we can say but he’s doing great and I thank God every day for his journey.