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may33jen
Multiple Myeloma Discussion • September 19
Talvey Side Effects: How Long to Recover?
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Has anyone on Talvey experience vertigo and ataxia? if so how long does it take to recover. I noticed a week after receiving my 4th step up dose the vertigo and ataxia. I still have the symptom but slightly better. I lost my sense of taste after the 2nd step up dosage. How long does it take to recover? I am off the med. due to the side effects.
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Miche4Life
Multiple Myeloma Discussion • September 18
Plasma Cell Leukemia
Anyone here diagnosed with primary Plasma Cell Leukemia. Diagnosed recently and doing immunotherapy. Stem Cell transplant to follow, if numbers keep falling. Anyone else with this rare disease?
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Barbara
Multiple Myeloma Discussion • September 16
Neuropathy
How to treat neuopathy?
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Donna
Multiple Myeloma Discussion • September 14
Post car t
So I will be having my mm bloodwork done in October. My June and July bloodwork was excellent. My kappa light chains were .6 my bmb and pet scan were also clean. I’m just wondering if my kappa light chains rise a bit is that a cause for concern? Do your light chains still fluctuate after car t ?
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4101Rowan
Acute Myeloid Leukemia Discussion • September 13
Midostaurin maintenance
30 yo daughter with AML FLT3-TKD INV16 has upcoming cycle 4 of consolidation and then done. Became MRD negative after cycle 1. Doc is trying to avoid BMT. Did anyone do the 12 months of Midostaurin after consolidation, and how did it go? Did it stall hair growth for 12 months? Any other issues with Mido maintenance?
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beigeFlamingo
Multiple Myeloma Discussion • September 10
Part D for 2027
I received my 2027 Medicare booklet online today. The out of pocket for Part D standalone medication coverage had a $2100 out of pocket cap in 2026. The new cap for 2027 is $2400. If you have a grant, it will likely cover the $2400.