Hello folks, In case you have not heard yet, we want to share some recent good news for multiple myeloma patients and their caregivers. Two new drugs have been approved for multiple myeloma in just the past couple of weeks — Talvey (also known as talquetamab-tgvs) and Elrexfio (also known as elranatamab-bcmm). Both of these drugs are immunotherapy drugs called Bi-specific T-Cell Engagers (BiTEs). One part of the drug binds to a protein on the patient’s T-cells, which are an important part of the immune system. Another part of the drug attaches to a protein on myeloma cells. Then, when the T-cells and myeloma cells are close together, the T-cells can destroy the myeloma cells. For more information about Talvey: https://www.jnj.com/u-s-fda-approves-talvey-talquetamab-tgvs-a-first-in-class-bispecific-therapy-for-the-treatment-of-patients-with-heavily-pretreated-multiple-myeloma For more information on Elrexfio: https://www.pfizer.com/news/press-release/press-release-detail/pfizers-elrexfiotm-receives-us-fda-accelerated-approval Cheers!

Hello! Newly diagnosed high risk (1q) at 34 years old in June 2023. On induction chemo for 4-6 cycles of Dara-RVD. Then Dana Farber wants to immediately do an auto stem cell transplant. The cancer is aggressive 70-80% of my bone marrow, but I have no detectable bone lesions. I am HARDCORE debating getting the SCT. Anyone else?

I had an SCT in Jan, 2022 and for about a year now I've been 21/7 cycle with 5mg revlimid after a monthly blood test. My August tests came back with low neutrophil counts and the oncological pharmacist pre-empted my cycle, said wait a week, redo the test and wait to hear from us before you start up again. I did that and they said the wbc levels were a little bit better, and to wait another week - maybe it'll fix itself - and repeat the process. Meanwhile, I'm extra concerned about infection and due to fly back east next month to visit my grandson. Has anybody had any experience with this? Thank you!

Does acupuncture provide any benefits to patients that are suffering from blood cancers and disorders? So the good news is that the answer is yes; it has a number of benefits on several levels. And the other very good news is that it’s very safe. Take a listen. https://www.beyondyourdiagnosis.org/q-and-a/does-acupuncture-provide-any-benefits-to-patients-that-are-suffering-from-blood-cancers-and-disorders/

Today is a good day; tomorrow will be an even brighter one! FDA Approves Talquetamab for Relapsed/Refractory Multiple Myeloma: https://www.onclive.com/view/fda-approves-talquetamab-for-relapsed-refractory-multiple-myeloma

I’m new to this group and joined because I have relapsed and may be starting the car-t therapy soon. I wanted to “hear” how it’s working for other myeloma patients. Thank you for your thoughts❤️

Hi, If anyone had to take Sarclisa or Selinexor, can you please share what side effects did you experience? Also, how did you respond to these? Thanks in advance

Hi, Did anyone go through Sarclisa and Selinexor treatment and can share what side effects they experienced? Thanks