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Playlist: ASH 2023

University of Miami Program Updates and HealthTree Collaboration | Ola Landgren, MD | ASH 2023

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Weber4
Multiple Myeloma Discussion • January 9, 2024
Managing Revlimid Co-pay in California?
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Hello. My husband is newly diagnosed (June 2023.) He is now on Revlimid with an insanely high co-pay! We have been able to get the co-pay assist card for the last two months that he’s been on it. But now starting in January, he has to reapply. They only give 15,000 for the year which will cover about two months. We applied again, waiting on insurance approval, but running into a lot loopholes again. I guess things are more complicated with that assistant program if you are in California. After the two months we will have to look into other options. Does anyone else have suggestions on where to get help if you live in California? He has private insurance. We are new to all of this and a bit overwhelmed trying to keep up with it all!
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HealthTree User • Admin
Multiple Myeloma Discussion • January 8, 2024
Sharing What Keeps You Going
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We are in the second week of the New Year! What has kept you motivated through your myeloma journey, and more? For me, it is the little things like snuggly hugs from my grandson.
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khakiDeer
Multiple Myeloma Discussion • January 8, 2024
Elevated Kappa: Any Benign Reasons?
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Hello! I am wondering if anyone might have insight on this. My mom was diagnosed with non-secretory myeloma in June. At that time, I joined a clinical study for immediate family members. I received my results back, and my Kappa Light Chain was elevated at 22.36. All other results were normal (no m spike and normal immunoglobulins - which was the same for my mom, though she had significant disease by that time as shown on a PET scan). I am therefore not eligible to be referred for follow up as the those items were normal. Does anyone know if Kappa Light Chain can be elevated for a benign reason? Thank you so much!
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JennyA • Admin
Multiple Myeloma Discussion • January 5, 2024
Sharing Your Teclistamab Story With J&J
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Hi everyone, if you are on teclistamab and want to share your story, Janssen (now called just J&J) has a website where you can submit your story or willingness to participate in sharing your experience. www.sharemyJanssenstory.com.
Janssen SHARE Network

Janssen SHARE Network

Janssen SHARE Network, Inspiring others through personal health journeys.

https://www.sharemyJanssenstory.com
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DIahanna • Admin
Multiple Myeloma Discussion • January 4, 2024
Revlimid Co-Pay Help: McKesson Resource
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Hello everyone, Another possible financial assistance to help pay for Revlimid if you have been forced into a generic/ McKesson has co-pay assistance: You can contact them at 800-657-7613.
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ARJacobs
Multiple Myeloma Discussion • January 3, 2024
Cord Blood Banking: Experiences or Advice?
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Does anyone with children have experience with cord blood banking? My wife and I are expecting a baby soon and have the option -- though at a substantial cost -- of banking stem cells from the umbilical cord for future use in treatment of close family members (including me, potentially). My oncologist didn't have any particular recommendation, so I'm curious if others here have elected to do this or received guidance from their care teams?
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cobaltSheep
Multiple Myeloma Discussion • December 31, 2023
Lingering Nausea & Appetite After SCT: Tips?
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I have a friend who had a SCT in Oct. She is still having issues with nausea and lack of appetite. She has reached out to her healthcare team but still having issues. I had a SCT 3/21 but did not have those issues, so I am asking if anyone else had those issues and how did you resolve them?