Hi. I was diagnosed with MM in June 2018 and underwent auto stem cell transplant in April 2019. I have been on maintenance Revlimid (10 mg) since that time and generally doing ok. The problem is that I have had crushing fatigue and get sick very easily since transplant. Has anyone found anything to help with this? I generally eat a lot of fruits and vegetables and exercise somewhat regularly. Thanks!

Getting ready for Car T. I will do collection in a week. Once cells come back (6 wks) I will admit to hospital, so they are telling me mid-May. I am wondering if anyone can share what the chemo is like that they give you 3 days before you go into hospital for infusion. They are saying it is a low dose and manageable, but I feel like that is an overused word. Also I am wondering how people managed through the hospital stay? I know CRS and neurological side effects are main things to deal with after infusion. I am told I won’t be able to drive for 2 months after infusion- yikes! I guess because of the neurological risks? I am 57 yo female, in good shape, I workout regularly and while treatments have been rough overall as I got to the fouth failed treatment, I am managing fine without any major side effects.

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Tim, how bad is the anemia? When my hemoglobin dropped below 7, I was given a blood transfusion and it helped a lot. Blood donors are few these days so blood is in high demand and labs are very stingy with transfusions

Hi there! Recently diagnosed so I don't even have all my results, risk factors, etc. yet. Sitting down with the specialist next week to design my treatment plan, so it's all very new and not a little scary. The only symptom I have is the anemia/fatigue. The rest of CRAB is normal/negative. We're also trying to sell our primary home and our rental property (in progress well before we know anything was amiss) and I just started a new job 6 days after diagnosis. So the stress needle is all the way to the right. Is there a way to differentiate the stress fatigue from the symptomatic fatigue? Other than caffeine-loading, what are some good tips, techniques, lies for mitigating the symptomatic fatigue? Thanks. Tj Scotts Valley, CA

Hi everyone. How long you waited after autologous transplant you waited to drop wearing n95 masks in small groups? My family currently wears masks anytime we encounter people outside of the home. I was very careful even before this with cleanliness and mask wearing at large events so I can be a bit extreme. Trying to get some sense of reality. Thank you.