I'm wondering if there is anyone else out there who suffers from cluster headaches? They're probably unrelated to multiple myeloma although I have heard of at least one case where they were directly related. And in all events, it's a challenge to deal with both, and I'd appreciate hearing from anybody who's also trying to do that. Maybe we can benefit from sharing our experiences. Thanks in advance!

Rev Rash Home Remedies? After one disrupted (two shots of Zarxio/Filgrastim to get my abs neutrophils back up) first round of induction on DVRd the Rev Rash showed up over the weekend. I understand that's about when it hits. The doc is suspending the Rev again so I can detox, I've taken Claritin and am using hydrocortisone on some of the worst spots. However, given the extent of the rash, I would need to buy the cream by the quart. Benadryl isn't an option for me as it turns me into the Creature from the Black Lagoon. The section here on possible remedies for rash is a bit light so I'm wondering if anyone else here has tried off the shelf stuff, used Grandma's Secret Salve, or some poultice from the local necromancer.

I was by coincidence diagnosed with free light chains MM in September last year. Stage 1. Standard risk. Feel (and felt) 100% well. 50 years old. I have now gone through 6 rounds of induction treatment and my FLC levens can no longer be detected in blood or urine. “Normal levels”. I have always been hesitant to ASCT (as I am worried about QoL aspects medium - long term) and although ASCT is my doctors recommendations at this stage they have agreed to give me 1-2 more rounds of KRD. Then we will take a bone marrow test to check for MRD neg. My questions: 1) has anyone here achieved MRD neg/CR through induction treatment (before ASCT) ? 2) if so has anyone postponed/saved ASCT for later? If so what has been your experience? 3) what have your doctors recommendations been? In The Determination phase 3 trial Dr Paul Richardson concludes that for young transplant eligible patients achieving CR/MRD neg through induction treatment the results are the same ASCT /no ASCT. For those patients (young, CR and standard risk) postponing ASCT “makes a great deal of sense” Dr Richard says. Yet, it is not standard of care…

Hello. I am autistic. I found out in December. It's still sinking in. Everything is different now, time feels fleeting. There's not enough time to process, to make sense of it all, and to feel caught up. And yet, with a new perspective, time passes more slowly. More deliberately. More intentionally. I would like feedback, from any who have gone through this before. Chemo is May 13th. I have been briefed on what to expect and the formalities. Hospital policies and procedures, forms and releases, disclosures, disclaimers, descriptions. But it's just paper, with no emotion, and no convincing way to convey expectations. Going in blind, I would like insight into what to expect. The parts that are not written or discussed. The stories only told by family and survivors of what they encountered, experienced, and felt. What stood out, and what what missing. What it felt like, and how the days passed. Thank you..

I am 7 months post aSCT in remission on maintenance therapy for Plasma cell leukemia, an aggressive form of myeloma. An MRI shows severe L hip arthritis which needs replacement as I have had difficulty walking the last few months. I am wondering if others have had joint replacements post SCT and how long they waited after SCT to do so? Thanks

I am a myeloma patient trying to help another one who recently started Talquetamab. She is suffering from extremely painful skin peeling on her feet and hands. Please comment if you have experienced, how it was treated, whether it was resolved, and whether it improved over time. Thanks much.

I am a myeloma patient trying to help another one who recently started Talquetamab. She is suffering from extremely painful skin peeling on her feet and hands. Please comment if you have experienced, how it was treated, whether it was resolved, and whether it improved over time. Thanks much.

I will be having a vertebroplasty next week for compression fractures of L3 & 4. Has anyone had the procedure and what was the recovery like?