Good morning. I am trying to up my nutrition (protein) to increase my bone health. I take calcium supplements with D3. I eat fish several times a week. Any thoughts on added protein through Whey powder? Anyone tried it?

What’s the goal of the Study? The Study aims to determine whether a whole-food, plant-based diet or certain supplements can improve the microbiome composition and slow myeloma progression in Smoldering Myeloma patients. Do all participants receive the same intervention? No. The Study has four arms: Whole-foods, plant-based meals, Curcumin, Omega-3, and Probiotics. Participants are randomized and change their diet or supplementation for 2 weeks. Want to learn more? Tap the link: https://healthtree.org/myeloma/curehub/private/research/5jLN2I1z8ORyETSwrhNY?utm_source=social+media&utm_medium=connect&utm_campaign=nutrivention&utm_content=smoldering

I was diagnosed with MM in 2019. Treated with dara, revlimid, and dex until my MM specialist took me off revlimid and dex. Side effects of constipation, insonmia, and low energy all improved, except neuropathy. Found on tne web that the supplement alpha lipoic acid would help neuropathy. It got rid of my pain but not the numbness. My numbness has increased a little each year, effecting my balance so severely that I have to use a walker. Any advice would be greatly appreciated. Thank You, Bob D

Bone Marrow Biopsy today! Praying for great results but why does it take weeks to get the results?

Has anyone been treated with a bispecific for myeloma , reached MRD- and then had a discussion with their doctor about bi-weekly vs monthly maintenance?

Sauna use. My wife and I used to enjoy our home traditional sauna and have been using it for years. My wife was recently diagnosed with multiple myeloma and is going through induction treatment. I am hoping she could enjoy it again after the Myeloma is in remission. When we asked my wife’s Myeloma specialist if it was ok for her to use it he did not give us a clear answer. I am looking for feedback from other Myeloma patients and what did their doctors tell them? Thanks

Personalizing Treatment Strategies Based on Multiple Myeloma Patient Genetics at Diagnosis: The objective of this study is to assess bone marrow biopsy slides obtained during your initial diagnosis of multiple myeloma and then define biological subtypes (DNA, RNA, protein, and other types of assays for tumor and none-tumor), predict prognosis, and potentially guide treatment decisions in the future, and anticipate the clinical outcomes associated with various myeloma treatment options and treatment combinations available to patients with multiple myeloma. This study is open to all myeloma patients regardless of where they are being treated. Patients only need to sign a consent form and connect their medical records, which takes less than 5 minutes. To learn more, click here: https://healthtree.org/myeloma/curehub/private/research/tvtF4ehxp6Kj233pQMFE

Does. Anyone know if the sugar is so bad for cancer ??

Hi, I have been smouldering for the past two years. My Doctor is sending me for a second opinion on whether or not I should get a stem cell transplant. I will be 74 next month and apparently it cannot be done once I reach 75. My most recent BMB showed that I am 15 to 20% kappa restricted plasma cells with aberrant CD56 expression. The findings are consistent with persistent Plasma Cell Myeloma. My question is can a stem cell transplant stop the progression of myeloma?

Hope everyone is having a great weekend so far! I have a question regarding Revlimid, I will be starting revlimid for maintenance, I’ve read there are many possible side effects from this medication, risk of blood clots being one of them, those that are on Revlimid, are you all taking a blood thinner with it? Thank you!

I am +120 day post SCT, I have not start maintenance yet at the moment, so no MM med, just take acyclovir and some supplements. My recent labs are in normal range except platelet is a bit low. I have palpitations almost all day that worry me. I am wonder if anyone has this problem, what can it related to and what can help with. I will see my oncologist on Monday. TIA! Mai

alot of back pain - my husband has been on pomalyst,dara, dex for a year now and he has back pain , can be really bad about 2 days before he takes his dex.....not sure if there's anything you can really do for it or not - he has taken tramadol sometimes to help but can be dipiladating for him - had a nerve block once but it did nothing....any thoughts....