Hello, I had autologous stem cell transplant on 5 SEP 2025. since then I've had this bitter taste in my mouth that makes certain foods such as steaks, very unpleasant to me. Even when I'm not eating, I can taste a little bit of the bitterness in the back of my mouth. Has anyone else experienced this after a SCT? If so, how long did you continue to experience this before it went away? Thank you

I am having difficulty with Revlimid as it is causing increase’s neuropathy. Dr I talking about dose reduction to 10 mg 14 days on and 14 days of or switching to Polymast? Any one have experience with Polymast? I may be spelling this wrong

Is today's "Upcoming Changes to Medicare for 2025" taking place? The link seems to not be working for this talk.

🚨 New Resource Alert 🚨 Discover the future of multiple myeloma treatment with our Bispecific Antibody Guide! Developed by HealthTree alongside myeloma patients and caregivers, and reviewed by medical experts, this multimedia guide dives deep into the world of bispecific antibodies, a groundbreaking immunotherapy. 💡 Whether you're just learning about bispecifics or need more details, this guide is packed with valuable insights for myeloma patients.🌟 💪 Empower yourself with the knowledge to make informed decisions! Start your learning here: Myeloma Bispecific Antibody Guide https://healthtree.org/myeloma/guides/bispecific-antibodies/introduction?utm_source=&utm_medium=connect&utm_campaign=bispecificguide&utm_content=all+myeloma

A phase III study by Bristol Myers Squibb is open comparing a new oral drug called mezigdomide (CC-92480), bortezomib and dexamethasone vs. pomalidomide, bortezomib and dexamethasone. Mezigdomide is part of a new class of drugs called CELMoDs. Study participants who have relapsed or refractory myeloma, prior exposure to lenalidomide and at least 1-3 lines of therapy are welcome to join. Learn more about this study here: https://www.bmsclinicaltrials.com/us/en/clinical-trials/NCT05519085?cid=s_2839272

People with multiple myeloma which has come back or stopped responding to treatment may be able to join the MagnetisMM-32 trial. Together, we could make a difference.     For more details about Pfizer’s MagnetisMM-32 clinical trial, please visit: https://www.pfizerclinicaltrials.com/nct06152575-multiple-myeloma-trial?cmp=789d7f1a-53cf-4154-bafc-ad212d49eef7&ttype=FB

This looks promising https://myelomaresearchnews.com/news/fda-approves-sarclisa-regimen-first-line-treatment-myeloma/

I did a autologous stem cell transplant, three weeks ago. I was discharged from hospital and I'm struggling with fatigue 😩. Can you kindly advise on what to use

Is m spike called by other names in a MM panel

Open question to anyone, I have read that stem cell transplants are not as effective as once thought, and only for last resort treatment. Is this based on new research or just an opinion floating out there???

Hi everyone, I am a 35 yr old F. In 2022 after doing routine bw, my family MD found M spike of 10 g/L (I am Canadian) with a kappa of 18 mg/L and lambda 52 mg/L. FLC ratio within normal range. My other bw were normal. I was told I had mgus and the plan was to do routine bw yearly. In 2023, my m spike increased to 11.9 g/L and kappa 24mg/L and lambda 66 mg/L. I have since been following a hema/onc doctor. Now in 2024, my numbers doubled! My lambda is 130mg/L and kappa is 55 mg/L. My FLC ratio has stayed within the normal range. We are still waiting for the M protein to come back. My other bw is normal. I am freaking out, I have been under a tonne of stress because of my increasing numbers but my hematologist says everything is fine. I know a bone marrow biopsy would be helpful but my anxiety is too high I could not handle the stress of undergoing that and waiting for results. Has anyone who has been told they have mgus have this happen to them before where both kappa and lambda numbers increase. I am terrified and now I have to wait, yet again for my m protein to come back and I pray it has not increased as well. But if my kappa and lambda double, I am nervous my m protein would as well. I also see a naturopath who recommended some supplements that have been discussed in the group. Thank you in advance!

I am sure this has been discussed, but I can't find it... I am starting my treatment protocol in a month or so, consisting of the 4-drug regimine: Daratumumab, Bortezomib, Lenalidomide (Revlamid)and Dexamethasone (DVRd). What side effects can I expect?